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I have SFN. The results of my biopsy (done last Oct.) were ankle: zero and knee: zero and shoulder: normal. It is caused by Sjogren's Syndrome for which I take hydroxycloriqen for Sicca. (For which it does help) It hasn't done anything for the SFN. I have no pain or numbness, for which I am grateful but the lack of those symptoms made it hard to diagnose. I do have loss of weight borne balance, which is a problem on many levels. I can't jump out of the way of my horses so find it difficult to be around them. And forget cleaning their feet. Did that one time and face planted. Not good. My legs seem to be worse (loss of muscle mass) inspite of IVIg treatments. I think I need something to remove the part of my system that is attacking my leg muscles. But my Doctor is unreachable (not just by me) so I am in a quandry as to which way to go. I told my rheumy all this and she said talk to the Infusion people. I will this Friday at my next treatment. We'll see.....
Replies to "I have SFN. The results of my biopsy (done last Oct.) were ankle: zero and knee:..."
@suetex
Have you had any brain/spine MRIs, EMGs, nerve conduction studies, spinal taps?
On IVIG for 10 yrs and has done nothing for my neuropathy. In fact, it has gotten worse. I do IVIG for low immune globulin.
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Sorry to hear about all this. Like you, I've had all the tests, but everything is basically normal.
I also suspect I may have Sjogren's.
You have different SFN symptoms than I do--I have a lot of pain and numbness, but I don't have a balance or strength issues. It seems like they can't offer a whole lot in terms of medications for SFN. Perhaps physical therapy, with exercises targeting balance and strength could be helpful.