1. < Blood Cancers & Disorders

I am newly Diagnosed with MGUS.

Posted by bach @bach, Jul 18, 2023

I was in a ski accident in Dec 2022 and fractured my pelvis. It is now July and it shows no sign of healing or bone growth. I was sent to a Physician Assistant who is a "Bone Specialist" and was diagnosed by blood and 24 hour urine tests as having MGUS. I am sacred and overwhelmed. My PCP referred me to a Hematologist and I'm still awaiting a call and an appointment. My Free kappa light chain is 44.1 and ratio is 3.61. My IgM is 987.

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grrranny | @grrranny | Feb 6 5:38am
In reply to @alicat01 "I’m brand new to the site- I was diagnosed a couple days ago with MGUS. I’m..." + (show)
@alicat01

I’m brand new to the site- I was diagnosed a couple days ago with MGUS. I’m scared and cry most of the time. Like many, googling has been my worst enemy. I’m having a really hard time seeing past the diagnosis rather than feeling appreciation I will have a heads up to catch myeloma early. My other bloodwork looks great and testing will be every 6-12 months. Did anyone else feel this way? What suggestions are out there to stave off depression and live a normal life? I’m a 40yr old mom to 2 young boys who need me for years to come.

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My 83 year-old husband has MGUS that was diagnosed over two years ago, and it is the only one of his four autoimmune diseases that has never caused him any problems. He also has the follow-ups.

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