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How bad is a diagnosis of Polycythemia Vera?

Blood Cancers & Disorders | Last Active: May 18 12:08pm | Replies (30)

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@joannecalandra1962

thank you this is very informative. Were you diagnosed with ET?

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Replies to "thank you this is very informative. Were you diagnosed with ET?"

Hi @joannecalandra1962 I’m happy you joined our big family in Connect. It helps to be able to talk frankly with others who are going through the same things you are. That’s how I got started in the forum, by jumping into a conversation about having acute myeloid leukemia and receiving a bone marrow transplant.
I’ve been able to share what I’ve learned through my experiences to help others. I guess you could say I’ve gotten a crash course in blood conditions, which I find fascinating. So that’s why I’m here…love to research, love to offer hope and encouragement to others. ☺️

I know this is all new for you. I just read on another reply that you’re waiting for your bone marrow biopsy results. They can take a good week for all the components of the testing to be completed. This will give your doctor a good overall picture of the health of your bone marrow (the manufacturing site for your blood/immune system) and its ability to produce healthy blood cells.
Waiting is the worst, isn’t it? What do you do to keep your mind occupied during the day?