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Want to connect with others with Spasmodic Dysphonia: Will you join?
Ear, Nose & Throat (ENT) | Last Active: Aug 22 4:13pm | Replies (23)Comment receiving replies
Hi,
I'm in the UK and there is not a lot of information regarding this condition,
After searching, i came across this forum, i was diagnosed 4 years ago and i get very frustrated,
I have a strange question, and was wondering if anyone else has had a similar experience,
I have found when i've had a few Guinness {my tipple} i speak with no problems, but the next morning i am back to having the same symptoms,
I find if i can talk with no problem when drunk,, what good would botox do, there must be some other disorder they haven't found,
Replies to "Hi, I'm in the UK and there is not a lot of information regarding this condition,..."
My Spasmodic Dysphonia was diagnosed in 1983, so there are probably more options now. At that time the doctor paralyzed the left vocal cord. It has left my voice raspy, but there is no problem speaking. I also did some speech therapy and Botox injections afterwards.
@vistagan I was recently diagnosed with vocal tremor and paralysis of one chord at UC Davis ENT Center. I have had one Botox injection and didn’t notice improvement. I’m currently trying speech therapy but don’t see it doing much. They are now recommending trying a filler injection into the one paralyzed chord. It’s frustrating because I feel like a guinea pig with no real answers or results.
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Welcome, @vistagan. I'm tagging @sguttmann, @katgallant, @bruceandruth1970 and others to make sure they saw your first post and question.