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Essential Thrombocythemia: Making treatment decisions
Blood Cancers & Disorders | Last Active: Mar 10 2:51pm | Replies (140)Comment receiving replies
Hi @healedbytheblood0119, you're right to do your research about best treatments for essential thrombocythemia. Anagrelide and hydroxyurea are effective treatments, as well as Pegasus for managing ET. As for toxicity, all drugs have side effects. Even "natural" supplements can have toxicity, side effects or drug interactions. Thank goodness there are options. What may work for one person, may not for another. Not everyone experiences the same side effects.
@nohrt4me makes a good point about managing with low doses before platelets are so high that higher doses are necessary.
What treatment is your doctor recommending for you?
Replies to "Hi @healedbytheblood0119, you're right to do your research about best treatments for essential thrombocythemia. Anagrelide and..."
Said bc I’m 44 I could do 1 baby aspirin daily. Said there were studies where ppl took 2 baby aspirin a day, 1 every 12 hours. Said this had increased benefits and protection.
If I wanted could do the iv platelet removal thing but then all the iron lost I’ll be anemic and other issues.
Since rx drugs are especially damaging especially to the liver and kidney I’ve read taking daily milk thistle supplement repairs the liver and prevents further damage. Makes sense. Have you heard of this?
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My Hematologist was recommending Hydroxyuria for me. He did not say what dose or how often I will take it but I have an appointment this Wednesday and will find out more.