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New to Pegasys for ET - advice please!
Blood Cancers & Disorders | Last Active: Feb 5 8:49pm | Replies (20)Comment receiving replies
Last I heard, Peg was about $1,200 per month. Copays vary widely by insurance co. Call your pharmacy. They can tell you what Peg would cost you if yr doc prescribed it based on yr coverage. I have rec'd very good care from my hematologist at our regional medical center 30 minutes away. I could get a referral to the big university center's MPN experts if I needed to, but I have been well controlled, no clots, and have had the standard bone marrow and genetic tests. So I don't think a consult with an MPN specialist is crucial. But if you have GP who is trying to wing it or an internist who is not doing standard testing and monitoring, I would ask for a consult. Good luck!
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Thanks for your comment. So Pegasus is about $1200 before insurance? Do they accept all insurances? I have BCross Advantage.
I’ll have to call BCross to ask. And my pharmacy.
I’m glad your Hema is doing what he’s supposed to.
I read bone marrow test are usually routine but mine only did genetic blood test and saw JAK2 mutation.
Is that normal? I mean trust me from what I’ve heard of how painful and bad bone marrow tests are I def rather not if don’t have to.
Yeah for me I need to get an MPN on board.
Even if my Hema was good regular Hema Onc don’t specialize in our issue, attend monthly and yearly conferences on it, stay up to date with progress and new meds, or work with many ppl like us.
Seems best chance to do well is MPN. Good luck to you too!