This is for both you @jeannie215 and @kayabbott . My story is long too and has been written before, but totally agree with what Patty @pmm said above. Absolutely, get an expert, have all the tests for baseline and clear diagnostics = Bone Marrow Biopsy, 24 hour urine, PET scan... I recommend a bone density scan too for monitoring for osteopenia / porosis. I'm 66, was diagnosed on 15 February 2023, have been involved with a whole food plant-based diet study out of Memorial Sloan Kettering in NYC. My last visit, one year mark of study participation will be next month on 13 March.

I too have IgA Kappa Light Chain MGUS. No M-spike. My labs have been stable over the course of this past year. I have a local, highly competent, and responsive hematologist/oncologist, I also meet with a top gun at Dana Farber in Boston, and have my study and expert Provider at MSK.

Of significance is that I came to be a lay-expert due to my dear husband's under diagnosis of MGUS when it was probably already smoldering myeloma. His supposed local expert, before I knew what I know now, did not perform the definitive diagnostics such as BMB, 24 hr urine, nor PET. He only did labs and when the IgA continued to climb he assured us all was well. He was wrong, very, very wrong. Steve died on 24 July 2022 of MM. The lame oncologist incorrectly diagnosed him with MGUS in October 2017.

That's the short story. Seek out a known expert in the field of MGUS/SM/MM; get the appropriate baseline diagnostics; advocate for yourself; learn all you can; breathe; eat well; exercise regularly; keep your weight down; have faith; vacation often. Oh, my guy at Dana Farber told me to "Keep your stress down."

You're in the right place to continue you journey. You are not alone. 🙏💜