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Essential Thrombocythemia: Making treatment decisions
Blood Cancers & Disorders | Last Active: 5 days ago | Replies (187)Comment receiving replies
I’m also a member of the myMPNteam.com social media for ppl with blood disorders and on there I’ve read a lot about HU, and the Argulide whatever it’s called being horribly toxic. I’m reading Pegasus is the choice if you want to heal.
Replies to "I’m also a member of the myMPNteam.com social media for ppl with blood disorders and on..."
Hi @healedbytheblood0119, you're right to do your research about best treatments for essential thrombocythemia. Anagrelide and hydroxyurea are effective treatments, as well as Pegasus for managing ET. As for toxicity, all drugs have side effects. Even "natural" supplements can have toxicity, side effects or drug interactions. Thank goodness there are options. What may work for one person, may not for another. Not everyone experiences the same side effects.
@nohrt4me makes a good point about managing with low doses before platelets are so high that higher doses are necessary.
What treatment is your doctor recommending for you?
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There have been a few remissions with Pegasus. No one is calling it a cure. Peg does seem to arrest disease progress, which anagrelide and hydroxyurea do not. It has side effects, notably depression, that makes it a poor choice for many elderly people.
If you are being scared off anagrelide and hydroxyurea by homeopathic practitioners, remember that they have a monetary interest in fear mongering. Doctors now tend to prescribe the lowest effective dose of chemo. The people who have most trouble with it are those who wait until their platelet counts are sky high and they have to start out taking high doses of the meds.