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MAC: Just how well do nebs work, anyway?

MAC & Bronchiectasis | Last Active: Feb 7 5:44pm | Replies (88)

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@camilleups

I am in the middle of my testing at NJH as I speak.
I have NEVER been so impressed with a facility before.
They test for everything that could be related to my BE and MAC that I was diagnosed with in the past 6 months. I have gotten companionate care from each provider/ staff member that I have dealt with. The test result come in each day. A nurse, PA, or MD meets with you at the end of each day and reviews your results and discusses treatment plans, tests, options etc for your next visits or your future. I truly feel this is the best place anyone can go and feel I will have the best possible outcome with them. My BC/BS and Medicare so far state that I am covered. I urge anyone new on this journey as I am to try to get in with them. It will take a few months to get in but once there it is one stop shopping. It would have taken me several years to complete all of these tests and therapy appointments on my own as I live 6 months of the year in Down East Maine where there is very limited care for this type of condition. It doesn’t hurt to ask, so give them a call.

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Replies to "I am in the middle of my testing at NJH as I speak. I have NEVER..."

I was there in October and yes it was good to have all the tests to know where one is with their health and in particular the BE and MAC. However, your visit appears to have been handled very differently than mine in terms of the statement of: "A nurse, PA, or MD meets with you at the end of each day and reviews your results and discusses treatment plans, tests, options etc. for your next visits or your future. " Could you explain your statement further.. Were the discussions because the tests showed problems or were they good results and they discussed the results to tell you all was good? My visit there went well just that this appears to be so different an experience than mine. I didn't get any results until my last appointment with the lead doctor who quickly went through the test results and it was overwhelming to have all discussed in that matter. Doing it at the end, the last visit, in that one session left me with many questions once I was home. Some tests came in after I was home and I had to interpret them myself and I'm not a medical professional. I called the lead doctor and did get a call back to help me in my questions but our time was limited due to the Dr. schedule. I am trying to get the second follow up call I was told we would have. I think getting the test results at the end of each day would be much more helpful and allow one to better understand and digest the information. Again, the visit overall was/is well worth it to gain greater insight into our health. Glad you posted this for all to know for possible future visit(s) etc. and for an understanding to help ourselves.