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Did anyone have a missed diagnosis of NSCLC?
Lung Cancer | Last Active: Apr 30 10:30am | Replies (82)Comment receiving replies
Make sure you are signed up for MyChart with an email address. I always get an email when any test result posts.
In an ideal world someone like the ER doc or radiologist would own cuing your primary that a test results is there that he/she should review. After I review it, I drop my primary a message asking if we should discuss.
You need to be as assertive as is necessary to be your own advocate.
Replies to "Make sure you are signed up for MyChart with an email address. I always get an..."
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This did not happen at my fabulous Northwestern Hospital in Chicago. I use MyChart quite often. I was visiting my daughter in Birmingham and an event unrelated to my lungs caused us to go to urgent care where they did an EKG and a chest xray. None of these results were included in my 10 pages of discharge papers. I was diagnosed with muscle strain. It was 4 months later when I was diagnosed with lung cancer that my daughter reminded me that I had a chest xray in Alabama. I was able to access it online - at the AL hospital portal - not MyChart - and saw that the radiologist noted a suspicious nodule - 1.4 cm - and recommended a follow up CT scan. The hospital never notified me or my doctor, whose contact information I had given them when I checked in. 4 months later in Chicago, the nodule was found to be 3.1 cm and was diagnosed as EGFR NSCLC.