Starting FORTEO tomorrow and so nervous.

Posted by vkmov @vkmov, Jan 24 1:42am

Any good experiences out there? Worried about serious side effects.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@hopefullibrarian

There's a Forteo savings card available directly from the manufacturer. I believe you can apply for another when the calendar year rolls around.

You'll find all of the info here: https://www.forteo.com/savings-and-support

Except from the that page link:
MONTHLY AND ANNUAL MAXIMUM SAVINGS:
For patients with commercial drug insurance coverage for Forteo: You must have commercial drug insurance that covers Forteo and a prescription consistent with FDA-approved product labeling to pay as little as $4 for a 1-month prescription fill of Forteo. Month is defined as 28-days. Card savings are subject to a maximum monthly savings of wholesale acquisition cost plus usual and customary pharmacy charges and separate maximum annual savings of up to $9,450 per calendar year. Card may be used for a maximum of up to 13 prescription fills per calendar year. Subject to Lilly USA, LLC’s (“Lilly”) right to terminate, rescind, revoke, or amend Card eligibility criteria and/or Card terms and conditions which may occur at Lilly’s sole discretion, without notice, and for any reason, Card expires and savings end on 12/31/2024.

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My experience was similar except mine was paid in full.

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@ykr

Lots of helpful postings on Forteo, but I need to know about Evenity. Has anyone out there been on Evenity for some time? If so, any problems with it? Major concerns?

Thanks!

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Nothing yet.y 6th shots are coming up.

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@ykr

Thanks for your input. I'm on board for trying it, but now having issues with the cost. Did your insurance cover the Forteo? I have Mcare and am on an advantage plan. The co pay is prohibitive. Might need to go back on a supplement to cover the cost. I have lots to check into. I believe I am over income for prescription assistance through Lily.

Take care

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I never picked up part D, because it's pretty useless for me. I got my first pens for 100$ each in Singapore. Columbia, Mexico, Canada most countries of the world don't charge their elders the highest prices in the world. All 100$ a pen. Except Japan where I've heard the pens are $41.
Some have had success with RX Advocates. I (maybe mis-) understand that there is a gradiation of cost according to income. Leosteo indicated that theLily income allowance is generous. There is a generic Alvogen with Gold RX coupon for 749$. And your endocrinologist may be able to get your (dis) Advantage plan to cooperate. If we elect good governance prices for seniors will continue to lessen. I hope you have luck.

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How are you doing taking these daily injections of Forteo? I'm waiting for approval from my insurance for this same treatment. Hope you are doing well.

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I just started my 3rd pen. The only side effect has been feeling tired. My part D insurance would have paid some leaving me with about $2,000 to pay for each 28-day pen. I need the Forteo to build my bones so I can have major back surgery. Thank goodness Lily has the Care Foundation and they are providing the medicine for free. My doctor’s office help coordinate everything after I filled out an application on line. My osteoporosis was undiagnosed because no doctor thought to order a bone scan when I should have had one. Please pass the word to anyone you know who is 65 or older to get a bone scan.

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doglover62, I'm finishing pen 10 with no negative effects. gently

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@ann707

I did two years of Forteo about 14 years ago. I don't recall any adverse reaction. I also traveled just putting the injector in a insulated lunch bag with a blue ice pack. Didn't have any problems with TSA either.

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I came here to ask for tips on that. I have taken several travel vacations (bike and barge and hiking the Camino de Santiago). I have no idea how I'd keep it refrigerated on those kinds of adventures.

What did you do AFTER Forteo? Did you and your MD come up with a life plan?

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@babs10

I came here to ask for tips on that. I have taken several travel vacations (bike and barge and hiking the Camino de Santiago). I have no idea how I'd keep it refrigerated on those kinds of adventures.

What did you do AFTER Forteo? Did you and your MD come up with a life plan?

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@babs10 Tymlos is similar to Forteo in its action, but does not need refrigeration. However it cannot get too warm! You might want to check diabetes supplies, which often include a kind of purse with an ice pack for insulin, including insulin pens that are a similar size and shape.

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that's such a great idea. Thank you.

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