I agree with you. We must self-manage. It has been interesting to find natural ways to live with the PV. I, too, extremely changed my diet and it is simple to manage. (I am a widow so I can eat what I come up with!) A wonderful surprise over the past four months that each blood work shows lower numbers…..no treatment was necessary. Platelets have been the problem for me. There is lots of info to read about fresh goods that lower platelets. However, the past four months numbers stayed level and in two weeks I am looking forward to another drop in those numbers. Researching food and exercise is also interesting. I do not take any medication. Also, Prayer is powerful and gives me strength and a positive attitude to move forward and enjoy my daily activities and encounters.
Thank you for sharing your dietary information, as I thought I was the only one who cared about that. God bless you all! M