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How bad is a diagnosis of Polycythemia Vera?

Blood Cancers & Disorders | Last Active: May 18 12:08pm | Replies (30)
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@albertedward

I have P V for almost 2 years and probably longer but did not know until I had 3 blood clots in one leg
Started on a blood drop every week and 1000 hydroxyurea a day .The blood drops made my iron go very low and I figured that's why I was so tired.But things get better and I only had 2 blood drops this year and was down to 500 hydroxyurea 3 times a week.I understand his concern but it gets better in time.
All the best to you and your partner.

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Replies to "I have P V for almost 2 years and probably longer but did not know until..."
beebo | @beebo | Feb 5 12:08am

I have same story as many of these replies. First diagnosed in 2021 and started with daily HU and phlebotomy every two weeks. After a few months my numbers started to stabilize. Now doing monthly blood tests (CBC) and 4x weekly HU . Only had two phlebotomies this past year. I’m not really aware of any side effects from the HU. You might also ask your doctor if you need to have your spleen checked. It can become enlarged from processing the excess blood cells produced as a result of the PV.

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