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← Return to PMR onset under 55?
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Hi. I was 46 years old when diagnosed with PMR. I am now 53. I have been on prednisone for 7 years. I have recently had a bone density scan and have the bone density of an 85 year old. I have since decided to go off prednisone and I am now in pain again. I want to try and do everything I can do improve my bone density.
Everything I read says it only last for 2 years! But maybe if you get it young it lasts for longer. My doctor doesn’t seem to care (or have time to care I suppose).
Does anyone have any natural treatment that has helped? Either with reducing pain or improving bone density?
Replies to "Hi. I was 46 years old when diagnosed with PMR. I am now 53. I have..."
Hi @tarshamaree, I would like to add my welcome to Connect along with @freeme and others. Sorry to hear you got PMR at the young age of 46. Seven years is a long time to deal with it. I'm not sure I would cold turkey stop taking prednisone without discussing a plan with your doctor or rheumatologist. That likely is contributing to more pain. It can be difficult to taper off. Took me 3 and half years the first time and six years later it came back again and I was able to taper off in 1 and half years. Mostly due to lifestyle changes with eating healthier and more exercise. You might find this information helpful:
--- Polymyalgia Rheumatica Diet: Do's and Don'ts: https://www.healthline.com/health/polymyalgia-rheumatica-diet
Hello. I am 54 and was diagnosed about 3 years ago. I have added flax seed oil, a gluten free diet, green tea, and a liquid calcium supplement to my prednisone regimen. But as I’m tapering (down to 3 mg and only reducing by a 1/2 mg monthly) I am still in pain. We’re looking at very low dose naltrexone as a possibility (another thread here talks about those currently using it).
Hang in there♥️
Calcium supplements along with Vit K and Vit D should be added to a calcium rich diet. Leafy greens, sardines, tofu, seeds, beans, and dairy products are a few great sources of calcium.
My doctor also has prescribed a Fosamax type drug weekly as I have osteoporosis.
Weight bearing exercises are also important to maintain bone health.
I am 60 and was diagnosed in August with pre. I started on 20 mg and have tapered down to 7. I need to get off of prednisone as soon as possible because of my osteoporosis. I take Evenity shots once a month for my bones. You should check into it. I have had 3 shots and so far no side affects. I’ve had a hard time getting past 7 mg. Going at a rate of 1 mg a month but may have to consider 1/2 mg taper instead because of the pain.
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If you can afford it, pemf and hbot. Also need to purchase equipment or be in a location where you can but treatments. So not cheap.