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How bad is a diagnosis of Polycythemia Vera?

Blood Cancers & Disorders | Last Active: Aug 13 12:12pm | Replies (33)
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Profile picture for jerrlin @jerrlin

I’m 75 and was diagnosed with PCV 2 years ago. I used to get phlebotomy’s every month but now I take hydros 3 times a week. When fatigue sets in, I get up and do some sort of exercise. It’s not bad for me but I guess some people have more side effects than others. I won’t let the old woman in.

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Replies to "I’m 75 and was diagnosed with PCV 2 years ago. I used to get phlebotomy’s every..."
sunshine2344 | @sunshine2344 | Aug 12 3:46am

Hi I am 75 also and diagnosed maybe in 2019. Anyhow I have only done baby aspirin and have refused medication. MyHgb platelets etc are within normal my RBC a touch high. But never had a blood clot My oncologist will not allow my HCT to go beyond 44. Even 44.5 they want to do phlebotomy which is draining and I get it done now monthly
It is too much.

Any comments appreciate

I am well hydrated. Sleeping ok. No itching follow mostly organic. And elimination of sugar except fruits etc

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