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← Return to disappointing results: would you continue or skip 2nd year of tymlos?
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disappointing results: would you continue or skip 2nd year of tymlos?
Osteoporosis & Bone Health | Last Active: Feb 6 9:16am | Replies (23)Comment receiving replies
@windyshores you had marvelous dexa results at end of tymlos. Did you have a significant dexa improvement at mid point of therapy? Sometimes I read that P1Np readings could precede bmd increase by 6-12 mo, maybe calcification process takes longer than initial bone building, hence bmd improvement shows up later?
@katwhisperer windyshore has a very good point. If your t score/bmd reading is still low after 1 year of tymlos and you stop here, whats next is crucial and this needs to be sorted out with your doc carefully. Do you have a tbs reading?
Replies to "@windyshores you had marvelous dexa results at end of tymlos. Did you have a significant dexa..."
@mayblin Thanks for your insights and windyshore's as well! I do greatly appreciate you both responding.
Based upon my last conversation with my doc, he's firmly in camp of doing the full 2 years. But this was BEFORE my 1 year DXA results. Curious if this will alter his thinking when I see him soon.
Yes...I have been debating next steps if stopping. A Bisphosphonate would only maintain the little I gained. I was hoping to keep Evenity in reserve as an option for AFTER full 2 years of another bone-builder - vs use it up too soon, if that makes sense?
I wonder if switching to Forteo for 6 mon-1 yr might be the fresh "shot" my body needs- no pun intended 🙂 to improve hip density, since F seems to do better on hips than T? Would have to ask doc about any risks switching midstream.
To be fair, for all I know Tymlos DID stop further loss, so don't want to do anything dumb, just because results aren't as good as I hoped. Just feeling really discouraged.
I did get TBS scores last year before starting Tymlos and again 1 year later (from the same machine.) I just don't understand what they mean or how to interpret them. I need to google and see if I can figure that out.
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@mayblin my much improved DEXA was at 18 months. I kept going for 6 more months as my docs recommended because, as you say, the P1NP didn't necessarily reflect what was going on in my bones. Thank you for providing info on that more specifically!
@katwhisperer I hope you can try Evenity!