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Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Blood Cancers & Disorders | Last Active: Feb 22 1:06pm | Replies (294)
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@mrgreentea

It sounds like you must have had quite an exhausting few years...

Mayo is rated #3, UMN #37... this makes me think that I should get a second opinion. Maybe this is unnecessary for SMZL vs other cancers. I'll find out.
Now that I have a ton of results, hopefully they won't need any more.

Paul

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Replies to "It sounds like you must have had quite an exhausting few years... Mayo is rated #3,..."
stankent | @stanleykent | Feb 4 1:08pm

Paul,
It sure seems like the standard plan for SMZL is to wait and start Rituxan when needed. The U or Mayo would probably follow a similar path.
For me, the need for treatment became more complicated. I had lung surgery in Nov 21. and follow up tests in 2022 found chest fluid. To make a long story short, through many tests/appointments and evaluation by a number of specialties it was felt my SMZL was the probable cause. I had 4 Rituxan treatments and my chest fluid cleared up. And the blood tests came back normal and spleen size was reduced, too.

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