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Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Blood Cancers & Disorders | Last Active: Feb 22 1:06pm | Replies (294)
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@mrgreentea

Hi Elaine,

I had a routine physical 12Dec23 and learned about my 35 WBC. My doc advised a follow-up with an oncologist. I started that journey on 15Dec23 at UMN with Dr Hu. Many blood tests, CT w/contrast, and ended in the last two weeks with a bone marrow drilling expedition and a lymph node sampling (I have it in my bone marrow, spleen, and some lymph nodes). So, all in all it's been about 6 weeks to get my baseline analysis. The care at the U has all been good.

I was at Mayo for a few things in the past & it was also good. Mostly I think I saw PAs more than docs. It would have been a lot of driving for all those tests. Still pondering what a second opinion might get me given that the status quo seems to be wait & see & then Rituxan, but I might try anyway.

Do you like your doc @ Mayo?

Paul

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Replies to "Hi Elaine, I had a routine physical 12Dec23 and learned about my 35 WBC. My doc..."
elainejarrett | @elainejarrett | Feb 4 7:56am

Who is rated #1? I like Dr. Witzig at Mayo but I also see a Dr. Brenda Larson at Frauenshuh, Park Nicollet, St Louis Park MN, when I am back in the Cities for the summer. I like both doctors.
I got a second opinion only because all my tests were done in Florida and when I went home, I felt better getting a second opinion due to how doctors are down here. If and when I need treatment, I shall be going back to MN for it. A biopsy was not possible on my very enlarged lymph node as it is one that is extremely difficult to get at.
My problem started in 2019 when my platelets kept dropping. It took until January 2021 to find out exactly what was going on with all the tests you have gone through. Keep in touch and I hope we all make it through with this cancer.

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