Dialysis - Stories and Questions

My husband’s peritoneal prescription was for 2000 when he used the machine overnight. Does that help?

Look elsewhere. I am closing in on 1 year post transplant and now 77 years old. It can be done at your age

@m1rmiller ,
It’s my aunt who is sick, but thank you for the info. Glad you are doing well.

@celia16 I have found from my own experience, that making sure my different specialists are in communication with each other, as having multiple health conditions going on can be quite a challenge! It is a balancing act, as I like to say. Making sure my diet is following different conditions/situations, medications take into account the different health concerns. For example, my treatment for multiple myeloma is tailored based on my kidney disease status, and those two doctors talk to each other frequently.

Being considered for a transplant, a transplant center will evaluate based on a patient's overall health, comorbidities [in your aunt's case, the lupus, plus anything else she has going on], the ability of the patient to take care of themselves after transplant, mental status, plus a lot more!
Age may or may not be a factor, as the posts above show, from @rickkaplowitz and @m1rmiller
Ginger

@rollimag Welcome to Mayo Clinic Connect! Wow, your husband was doing only one manual bag a night, but using the cycler bag of 5000 cc? That was a lot of dialysis fluid going to waste each day. Is there a reason he was not doing manual exchanges?

You mention "was". Did he get a transplant? When, and where, please!
Ginger

@rickkaplowitz Welcome to Mayo Clinic Connect. I see you have been a member here since mid-2022, and this is your first post. We welcome your dialysis journey story when you are ready to share it. We all have the chance to learn different things from each other, here on Connect!

If I have the opportunity to be evaluated for transplant, it would be at Legacy Health in Portland [OR]. Their basic criteria list does not indicate a limiting age.
Ginger

In a post I just wrote to Ginger, I noted that I'm not a believer in absolute rules, and am delighted to learn that you did get a transplant in your mid 70's. I do understand that there are wider ways and places to look ... but for me personally I simply don't wish get a transplant unless/until we can get them without needing to medically suppress autoimmune-type responses.

Sorry, I meant 2000 not 5000 cc overnight using the machine. He now does everything manually. One overnight for 10-12 hours of 2500 cc exotoneal (purple low glucose because he’s type 2 diabetic) and then 2 cycles of 4 hours each if the green 2000 cc.

Good day to all here!

It is a day to sort out updates and see how everyone is doing, okay? I'll start!

I recently looked into getting a kidney transplant. My request for evaluation was turned down at six transplant center, due to my multiple myeloma condition. Long story short, they want to see me go through a stem cell transplant and recovery, showing no evidence of disease, before considering me for kidney transplant. That could take up to two years, if successful, then comes try for solid organ transplant evaluation.

I am going to stay on peritoneal dialysis, but am changing to [hopefully successful] icodextrin solution. This is an overnight dwell of a maltose-based solution, rather than the glucose-based solution we are familiar with. Dwell will be about 12 hours. Then drain. There is evidence that it may help my albumin numbers. It will certainly help my quality of life, not doing two manual exchanges a day. The training will be this coming week, and I understand it will be similar to what I already do.

Is anyone else doing this type of extended dialysis? Some diabetics are able to tolerate this modality better than the typical solutions., since the manulose is gentler on the system, and doesn't reabsorb like glucose can. Your thoughts?
Ginger

hi look up kidney coach very solid program well research good supplements also new out renal awakening drops fdr approve take care god bless