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High Factor VIII (8) Blood Clotting Disorder and its Impacts on life

Blood Cancers & Disorders | Last Active: Sep 10 9:49am | Replies (133)
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@laurenl

Hi, I was diagnosed with high factor 8 2 years ago at the age of 25. I go in for annual blood screenings and take low dose blood thinners every day. I was originally told a higher dose thinner would be better, but due to potential complications with future pregnancies I declined that option. I also finding it really challenging to find information or support groups since it is a relatively new test/diagnosis.

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Replies to "Hi, I was diagnosed with high factor 8 2 years ago at the age of 25...."
carriebythesea | @carriebythesea | Feb 10 11:26pm

Hi Lauren,

I was originally told that I would miscarry if I got pregnant. As more information became available over the years, other women were able to have successful pregnancies as long as they were properly managed so it's safe for both mom and baby.

I truly hope that you will get the opportunity.

Best wishes,

Carrie

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Colleen Young, Connect Director | @colleenyoung | Feb 11 2:03pm

That is good information to know for women trying to conceive. Are you currently planning a family or are you being prepared for possibilities in the future?

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