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Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: Nov 15, 2024 | Replies (329)Comment receiving replies
Your story is very similar to mine. I have an ultrasound on my spleen this Tuesday as it is starting to bother me.
I winter in Florida so see an oncologist here but as soon as I get back to Minnesota, I see Dr. Witzig at Mayo. Which doctor do you see? How often do you get a CT scan? I am fortunate to be able to discuss this problem as very few people have it.
Elaine.
Replies to "Your story is very similar to mine. I have an ultrasound on my spleen this Tuesday..."
Elaine. Is your spleen getting painful.?
I started with Dr Colgan and he retired and now I see Dr Paludo or his PA.
My schedule now is that I have appointments every 6 months for blood test and the Hematology doctor. Once a year they do an abdomen CT.
Good luck with your test on Tuesday.
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Hi Elaine,
I had a routine physical 12Dec23 and learned about my 35 WBC. My doc advised a follow-up with an oncologist. I started that journey on 15Dec23 at UMN with Dr Hu. Many blood tests, CT w/contrast, and ended in the last two weeks with a bone marrow drilling expedition and a lymph node sampling (I have it in my bone marrow, spleen, and some lymph nodes). So, all in all it's been about 6 weeks to get my baseline analysis. The care at the U has all been good.
I was at Mayo for a few things in the past & it was also good. Mostly I think I saw PAs more than docs. It would have been a lot of driving for all those tests. Still pondering what a second opinion might get me given that the status quo seems to be wait & see & then Rituxan, but I might try anyway.
Do you like your doc @ Mayo?
Paul