← Return to Polycythemia Vera and Nutritional Ketosis

Discussion

Polycythemia Vera and Nutritional Ketosis

Blood Cancers & Disorders | Last Active: Jul 22 5:35pm | Replies (54)

Comment receiving replies
@chitra

Recently, I made a series of changes to my lifestyle to avoid monthly venesection. It seems that the hard work paid off! First, I skipped meat, rice, flour totally. However, my diet was not entirely a keto diet, because I ate Banana, dates, mangoes a lot. For breakfast, I ate two boiled egg (without yolk), a muffin (made of almond flour, egg, banana, very little maple syrup) and a banana. For lunch, I ate fish with a veggie fry such as Okra, capsicum, green bean, Aubergine etc. My breakfast was at 7.30 am and I finished my lunch by 3pm. Between breakfast and lunch, I ate lots of fruits (fruit salad) such as Mango, Avocado, Kiwi, Pear, Apple, pickled Artichoke, green Olive etc. I did not eat anything after 3pm, meaning I have been on an intermittent fasting for some time now. At the beginning, it was very tough to be on an intermittent fasting, now my body seems to be adjusted with this plan and I do not feel hungry anymore after 3pm. In addition, I have a cast iron pan which I stopped using and, I tried to eat organic as much as I could.

The idea behind my diet was to become anaemic as my body itself produces a lot of Iron already. Now, I often asked myself as to why rice or bread deteriorate my blood condition? Then I read the label of snacks bought from store carefully and I found that most of them are made of fortified flour. You may know that the fortified flours are processed and additional nutrition such as iron are added to it. Rice, I bought, mostly enriched and enriched rice (again additional nutrition such as iron are added to it). Even when I tried to buy organic flour it is also fortified ! Therefore, I completely stopped eating any food made of rice and flour. Egg yolk also contains a lot of nutrition such as iron which I do not need. As I totally avoided rice and flour, I often felt dizzy and headache and to avoid that I regularly ate Banana, Mango and occationally dates. It means I have taken carbs from whole fruits to fulfil the required intake of carbs in my body. I also, rarely eat Potato, as the potato has no chance to be fortified. In case of choosing fruits and vegetables, I checked their nutrition value as I do not need any iron. For example, I was enjoying plant-based sausage made of Soybean. When checked its nutrition value, I regretted eating sausages made of soybean and stopped eating that.

My monthly venesection has been cancelled twice and there is no planned venesection for me now. I got an appointment at the beginning of May and I will have a blood test before that. My consultant said that whatever I was doing I could continue that. I hope it helps you understand my diet. Please consult it with your doctor before following my diet, thanks.

Jump to this post


Replies to "Recently, I made a series of changes to my lifestyle to avoid monthly venesection. It seems..."

What we put in our bodies, food or onnour skins, is medicine. Food is medicine, when my health coach first said that I was VERY skeptical. Not any more, I had extensive bloodwork done, cost about $400 out of pocket, insurance won't cover it (the insurance companies want us to be sick and love denying claims). It showed me exactly what foods my body does not tolerate and would cause me issues. Primarily inflammation which is at the core of so many diseases, not just autoimmune. Gluten (white flower flour etc) and dairy are the 2 most notorious for causing inflammation in our bodies. I've cut them out almost completely for years now and even though I have very achy joints, something else is going on that the docs haven't figured out.

I was misdiagnosed with PV in April 2023, was Jak2 negative and they still felt 2 other markers meant I had PV. My gut was telling me I didn't have it, that something else is wrong. I was right, the 3rd oncologist had me do a bone marrow biopsy immediately and sure enough NO blood cancer markers at all. Yet the 2nd oncologist took me down to a hemoglobin of 10, which was so wrong and i felt like crap still. It's back up to 14.4, still normal but has been ticking up.
It's been wack a mole game trying to figure this out. I hope soon.

Diet is everything, the bloodwork I mentioned is liquid gold I'd you ask me. I have a road map of what I should eat, like corn meal which is in A LOT of foods.

Processed foods are evil, lol. Seriously, they're very bad for your body.

Good rule is, if it has any more than 4-5 ingredients, think twice about eating it.

Eating clean is what we all need for optimal health. It is time consuming but do prep for the weeks meals one day on the weekend. Your body will Thank you!

Be well, be safe!