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DiscussionEssential Thrombocythemia: Making treatment decisions
Blood Cancers & Disorders | Last Active: 5 days ago | Replies (187)Comment receiving replies
Replies to "I also have et, ido take hydrea,my side effect is feeling very tired ,and slowly down..."
I felt down on myself too (and still do sometimes) but then I heard from Lori the mentor on this site about how while yes life is different now, it’s still going and we can embrace that. She went through leukemia and has come out strong. We can take our meds, eat healthy, try our best to stay active and ideally have a great supporting family/friend base. For me (what has worked) is I take ~30 minutes every day and lay down with headphones, listen to my favorite music and just “breathe” while focusing on being positive. this restorative time has helped keep my energy up the rest of the day. May not work for everyone but I was inspired by Lori’s advice.