I’m sure everyone is different. My burning and pain is not always present. Sometime's it’s more numbness. Depends on activity or sometimes I don’t know what causes the flare ups. I am lucky in that it is actually better when I go to bed so I can get some sleep, although not too much because one of my medicines sometimes gives me insomnia.

I experience all of these - pain, burning and numbness. The numbness is minimal, mostly my fingertips. I’m trying to think how to answer your question. I am on pretty high doses of carbamazepine (Tegretol) and take Effexor to dull nerve pain. I take Percocet. My body language and instinctive activity choices tell me that pain, even if I’m often oblivious to it in the moment, is with me constantly. I just rarely dwell on it. I know how to minimize it by avoiding activities I used to do, and living differently than I did pre-SFN (eight years ago).