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What did you experience when cutting down Tacrolimus?

Transplants | Last Active: Feb 3 4:45pm | Replies (47)
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@gotanewliver

Holy cow! I'm a transplant noob (Liver 2.0 arrived in Dec, 2023) , but I'm taking 20mg of Tac daily (as 10mg/10mg).

Tremors & headaches pretty constantly, but I was also suffering from debilitating itching (puritus) for almost 3 years. During the last 18 months, I probably didn't sleep more than a couple broken hours per night before transplant due to severe itching, so compared to that I'll take tremors & headaches any day. Though I do hope the side effects decrease in severity/frequency over time.
I guess I'm just taking a massive dose of Tac and I can decrease it over time???

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Replies to "Holy cow! I'm a transplant noob (Liver 2.0 arrived in Dec, 2023) , but I'm taking..."
Rosemary, Volunteer Mentor | @rosemarya | Feb 3 7:16am

@gotanewliver, Welcome to Connect and Congratulations on your recent liver transplant! ❤️ I read in another post that you had your transplant at Mayo Rochester. That is where I received mine in 2009. I can easily remember the itching and sleepless nights before my transplant along with the adjustment to the medications afterward. I can assure you that the tremors will diminish, but might not go away completely, as your medications are adjusted. Also your lab schedule will be adjusted as you move farther out from your transplant. As for the dosage of Tacrolimus, it depends on your individual labs and other monitoring.

It is okay to contact your transplant coordinator about your headaches and tremors, or any other bothersome symptoms. Are you on the Mayo Clinic Patient Portal?

@gotanewliver, How is your recovery going? What would you like to ask?

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