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Hi Lori,
Thank you for your reply. The blood type change my daughter had has been verified by two different hematologists. She never had any transplant. It is indeed rare and scary. Even just a basic Google search shows it. But there are also a few studies about it as well.
I’ve included my daughters genetic result for her blood disorder.
Interestingly her blood type was also B+ and changed to O+.
We are just beginning to understand the blood disorders in the family. My husband and brother have G6PD. My son has something strange too. My niece just developed leukemia out of nowhere. So I really want answers.
I’m hoping a flow cytometry test will reveal it all. Do you know how comprehensive this test is?
Replies to "Hi Lori, Thank you for your reply. The blood type change my daughter had has been..."
Wow, this is really interesting. I’d never seen anything to indicate blood types can change besides having a bone marrow transplant. Thank you for sharing the article mention. I finally found a related article from the National Institute of Health relating to cases of patients where Blood group changed during their involvement with AML (acute myeloid leukemia). Not sure how I missed this one!
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5242122/
I can understand your concern for wanting further testing to see if there’s anything more to your daughter’s condition. If she hasn’t had a bone marrow biopsy with the cytology report, that would be a good place to start. I’m not sure the age of your daughter but if she’s given the option for sedation it would make the experience more comfortable for her.
I’m sorry to hear that your niece has leukemia. Do you know which type? I had leukemia too and know the challenges so I wish her well as she goes through her treatments. Those treatments can be tough but they are also life savers.
Since Alpha Thalassemia is genetic and you’re all just learning about blood disorders in your husband’s side of the family tree, has your son been tested?
What types of symptoms does your daughter have with her condition, if you don’t mind my asking. Does your son have similar symptoms?
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Hi @loricehoward, please note that I removed your daughter's testing results as they contained personal identifying information. To protect patient privacy, you can upload them after removing information like patient name, contact, medical number, hospital, etc.
I can understanding your need for answers. It sounds like you are working with a genetics department and genetic counsellor. Are other members of your family also getting genetic testing?