Connect
← Return to Long haul Covid tremors and muscle spasms
Discussion
Long haul Covid tremors and muscle spasms
Post-COVID Recovery & COVID-19 | Last Active: Aug 30 7:09am | Replies (122)Comment receiving replies
Unfortunately, we seem to be part of a class that has been left behind. I understand the world wants to move on from Covid, but every day is our own fully blown, surging pandemic. My neurologist did not find it strange that I couldn’t stand on 1 foot for longer Than one second, never mind the fact it took me a few tries to discern between my left and my right foot! Furthermore, Barak Obama is NOT the current president of the United States, nor was, she concerned that I didn’t know what hospital I was in… Mind you, it was the hospital I was born in! I was not told that the MRI scans of my brain showed brain lesions, and sadly it feels like I am the last one to know that things are being stripped away from me. I too, was very healthy and active at 48 years old, and now seemingly where you are at as well. Nothing in my body seems to function, normally, and the lack of understanding or desire to be around other people is defeating. If nothing else, we can support one another as a unified community and remind each other, that we are not alone. My love, understanding, and hope go out to all those who are affected as well.
Replies to "Unfortunately, we seem to be part of a class that has been left behind. I understand..."
Connect
I'm so sorry. You have my sympathy in your struggles.
I would like to mention, though, that I am now well again! I'm not sure if this might help you or anyone else, but I will tell you about the surgery that brought me back to normal.
It had been nearly 2 years of struggles, so many tests, specialists, 3 neurologists, etc. In the end, a neurologist saw my three brain MRIs and said there was a "very impressive" sinus infection going on in my right sphenoid sinus (behind my eyes and nose). It was so big and so bad that it had begun to move the bones. She said it was a "very unusual presentation", but it was putting pressure on my brainstem and cerebellum, which was causing my extreme vertigo and balance issues, my incoordination, my tremendous, debilitating headaches, my tremors, my confusion, etc. The MRIs had shown this issue all along, but everyone else had missed it. It showed as completely opaque on my MRI in the right sphenoid sinus. I saw a new ENT who completely agreed with my 3rd neurologist and he said I needed surgery.
I had a very extensive, 2-hour long sinus surgery. After the surgery, the ENT told me I had a fungal ball in my sphenoid sinus. The only way to get rid of that is surgery. I had issues and infection in ALL of my b sinuses (sphenoid, maxillary, frontal, ethmoid). I even had a septal deviation that needed surgery at the same time, so that was done as well. It took a couple of months before I was really healed up, but I am telling you, the vertigo is gone, the headaches are gone, my mobility, balance, and coordination are back ... and so is my energy and speed in walking!!!
I no longer walk like I'm 99 years old (at a snail's pace). I can walk fast or run!
God is so good and faithful. He got me through these terrible, life-changing struggles and led me to the right specialists to get me back to normal.
I pray that this information will help you or someone else.
Keep pushing, keep advocating for yourself, keep getting 2nd and 3rd opinions until someone listens, cares, and figures out what's gong on with you.
Blessings!