← Return to Life after total thyroidectomy after papillary cancer

Discussion

Life after total thyroidectomy after papillary cancer

Thyroid Cancer | Last Active: Feb 3 6:14am | Replies (40)

Comment receiving replies
@greyfish49

After almost a year since my Thyroid cancer dissection with thyroid removal and a lot of lymph nodes, I’m having stiffness, pain and numbness, my doctor told me I’m just paranoid but I’m trying to adjust to my medication too. I’m just feeling miserable.

Jump to this post


Replies to "After almost a year since my Thyroid cancer dissection with thyroid removal and a lot of..."

If I was feeling miserable and my doctor told me told me I was just paranoid I would get a new doctor!
I was surprised when the endocrinologist at the cancer hospital only tested T4 and TSH when I was feeling miserable, however I think he is only interested in whether the cancer has come back. I am changing endocrinologists so I can get better followup for the issues and not just get told “Your T4 and TSH is all normal.” I am hopeful that an endocrinologist not affiliated with the cancer hospital will have more experience with the side effects I’m dealing with and can help me get the right medication level for my system. I will still be going to Endocrinologist at cancer hospital for annual scans but I want to have an endocrinologist who will focus on my entire system so I will feel better.
I have some of the same side effects that you mentioned and they are miserable! If the doctor thinks you are paranoid, maybe you can ask him to order a PET scan to rule out cancer ( put your mind at ease) and then consider going to another Endocrinologist…. Even if it is just to get a second opinion. The side effects of not having the right dose of medicine for YOUR system are miserable, however not having a doctor who listens is just as bad. Good luck!