← Return to What did you experience when cutting down Tacrolimus?

Discussion

What did you experience when cutting down Tacrolimus?

Transplants | Last Active: Feb 3, 2024 | Replies (47)
Comment receiving replies
@nlad4

In a sleepless night I stumbled across this board. My transplant was 12/2021 I have had cramping issues my whole life. It became even worse PT. I’ve done a lot of looking and this is the first time I have heard magnesium.

Thank you for sharing!

I’m on 2mg Morning and Night working down to hopefully not needing it. Cautiously optimistic.

Jump to this post

Replies to "In a sleepless night I stumbled across this board. My transplant was 12/2021 I have had..."
Rosemary, Volunteer Mentor | @rosemarya | Feb 3, 2024

Welcome to Mayo Connect, @nlad4, I am so glad that you found Connect and have joined with other transplant recipients as we share and support each other.
I am sorry to hear that you have been experiencing cramps for such a long time. Is that why you were sleepless the night that you discovered Connect? Since you had cramps before transplant, I am wondering whether the cause is related to the Tacrolimus. Have you and your transplant team discussed this?

I transplanted 14+ years ago and expect to be on tacrolimus and Cellcept for the rest of my life. Might I ask, for my own curiosity, how you are "working down to hopefully not needing it"?

VIEW AND REPLY