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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 26 9:56am | Replies (870)Comment receiving replies
Hi everyone. I was diagnosed around 2005, but I'm pretty sure I've had heart related symptons since the second or third grade, including abrupt unconsciousness with no warning or apparent reason and doctors could not figure it out. Last episode of that type was almost 50 years ago. Anyway, I've just been referred to another cardiologist for evaluation for the new drug so I'm going through another round of testing and recommendations,
including an ICD. I'm wondering if anyone knows of any recent reliable sources regarding SCD, ICD and 75 year old men with multiple risk factors in addition to HOCM. I've found some studies and journal articles, but I'd love to find more.
Replies to "Hi everyone. I was diagnosed around 2005, but I'm pretty sure I've had heart related symptons..."
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Hello there @stillstudying, and a warm welcome to Mayo Connect!
You ask some great questions, which makes me think it is how you picked your online moniker 🙂
Here is a link regarding HCM from Mayo:
https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198
and another from the NIH:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5248664/
Have you had a chance to poke around here in Connect? There is a lot of information to read about so many things, not just HCM.
Member @irishpeaks knows a thing or two or three about ICD's, as he lives with one. And the Camzyos group here in Hypertrophic Cardiomyopathy has been a wonderful place to learn about Camzyos and the ups and downs of being on it.
You are already doing the best thing you can do...learn as much as you can about what you have. That way you can be your own best advocate. Being informed can save your life!
Do you know if the cardiologist you've been referred to is knowledgeable about HOCM and Camzyos?