tmragain, I have never heard of anything like this. This must be awful. I think you are on the right path with a neurologist. Praying for you right now to get better. I have had bouts of vertigo which is nothing compared to what you are going through.....they were no fun. Antivert/Meclizine was what I was given and it worked for me. I had a dear friend who battled vertigo for quite a while and she had to go on valium until it went away and it did. I know yours is worse and I am so sorry. God Bless You.