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Update: Lutethera treatment is over

Neuroendocrine Tumors (NETs) | Last Active: Feb 21 1:13pm | Replies (25)

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@kc43

When will you know if the treatment was successful ?
I have pancreatic with mets to liver. 2019 I started lanreotide injections, capcitabine and temozolomide chemo pills. 2019 my liver was very compromised with so many tumors & now I have 70% or more healthy liver . My Dr is now wanting me to stop the chemo due to bone marrow issues associated with long term use and is proposing to stay on Lanreotide for as long as it works with scans every 3 months to monitor. If the tumors start to increase significantly then he wants to start the lutathera treatment.

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Replies to "When will you know if the treatment was successful ? I have pancreatic with mets to..."

@kc43, the liver is an amazing organ. I'm glad to hear that it has recovered 70% of its former self. It sounds like your doctor is monitoring your health closely and that stopping chemo, at least for a period of time, is advisable. Are you comfortable with that decision? Have you stopped yet? How are you doing?