Neuropathy pills: How to avoid scams?

Hi Joyce @joyceeez, Welcome to Connect. I hesitate to call Nerve Savior a scam but it's not going to cure neuropathy if that is what you are looking for. There is no cure for neuropathy but there is evidence of some supplements that provide relief for neuropathy symptoms. A lot of the ingredients of Nerve Savior are also listed as supplements people with neuropathy have found provided some form of relief for their symptoms on the Foundation for Peripheral Neuropathy's list of complementary and alternative treatments - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf.

Are you able to share a little more about your neuropathy diagnosis and any treatments you have tried?

You’ll want to share the ingredients of that supplement with your doctor to see what is right for you. Nerve Savior contains: Alpha-Lipoic Acid, Vitamin B6, Vitamin D3 (Cholecalciferol), Folate, Vitamin D12, Ashwagandha, Turmeric, Benfotiamine, Acetyl L-Carnitine, Broccoli Powder.

My PCP doctor recommended Alpha Lipoic acid for me. The neurologist told me it was okay for me to take B12 for 6 months but no more. And definitely not B6. My B6 is getting too high. B vitamins are essential but too much can damage nerves. Turmeric is best absorbed when eaten warmed up with black pepper - you’d want to find out if your body can absorb turmeric from a capsule. And, ashwagandha - I’ve looked before and I can’t find consistent reports whether this is good or not.
The other issue, is whether this brand is actually providing appropriate levels of the supplements or not. It drives me crazy to read the reports that say some supplements don’t have what their label says it has . . . I want to know which brands they know are mislabeled.

It seems like Periferal Neuropathy is the newest thing to have. I see advertisements every day on TV for some thing that will cure it or help it or Clinics that have opened up in the area that have THE answers for your pain…🙄

So what is your point exactly?

it's NOT the newest thing to have. it's been around a few decades. DO NOT fall for these ads you see on TV. a lot are scams, I BELIEVE. as far as i've found out. there is NO CURE. so be careful out there. d

I was being sarcastic… I have that tendency I guess. And that’s right it’s not the newest thing that was my point. Someone comes up with a scatterbrain idea and tries to sell it on television and of course if you are in a lot of pain often you will jump at anything to alleviate that pain.

that's ok. i love sarcasm. it was late and tired, so i missed it.

Having neuropathy for 15 years now and tried everything, can hardly walk now using my canes whereever I go. I feel nothing works much at all. Supplements are mostly a scam in my opinion after taking every one making claims that just are not trueI, they just want our money is all. If something does pop up, and works well, our doctors will know very quickly, having many patients suffering as I do..
One thing, I wear foot warmers in cold weather, anything colder than about 70 degrees and it does help as my feet are in that freezing state most all the time.
2nd thing, I also take Gabapentin several times each day and between these two items I get by, just enough though that I can sleep at night..

So this is just an opinion, but I feel anyone who takes colesterol meds is at risk for neuropathy. Doctors will not verify this saying they have no evidence but if one looks at what neuropathy is, the loss of the Mylan sheath that is made from our bodies natural colesterol working like an insulator over the nerves, it sort of makes sense. I took heavy does of this Med and within a year I had neuropathy that steadily got worse and worse..The nerves lose this covering that then sends pain signals to the brain..My own therory but there you have it..

Welcome @gc45, Thanks for sharing what has helped you. I too have had that statin discussion with my primary care doctors over the years and chose to work on healthier eating and more exercise to improve my cholesterol numbers. I posted my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.

Have you seen the helpful information on the Foundation for Peripheral Neuropathy website?
--- Living Well: https://www.foundationforpn.org/living-well/

I too took statins for cholesterol for over 15 years and have been dealing with neuropathy for 7 years. I agree with your theory. I got my doctor to switch my medication to Zetia and now Repatha. It is a new change so I don't know yet if neuropathy will improve.