Neutropenia, but no diagnosis: I'm curious, concerned and scared

Posted by momz @momz, Oct 19, 2021

Have not been diagnosed yet?
Curious, Concered and scared. I have had neutropenia for a few years and currently have blood work done every 3 months . Had bone marrow biopsy done in February revealing Rearranged Clonal immature T cells. Dr said no treatment till it rears its ugly head. I constantly search lab results and blood levels for specific blood cancer? I am looking for any thoughts. Thank You Brenda

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momz | @momz | Feb 1 9:38am

In reply to @sonia85 "hi dear @momz Any Update about your case?" + (show)

Hi,
How kind of you to ask.
I have an appointment in a few weeks. I’m ready to get more insight and answers. I have a lot of questions.
Thanks Brenda ❤️

sonia85 | @sonia85 | Feb 1 9:44am

In reply to @momz "Hi, How kind of you to ask. I have an appointment in a few weeks. I’m..." + (show)

Dear @momz
Thanks good
Still in w/w stage?
There any new?

momz | @momz | Feb 1 10:02am

In reply to @sonia85 "Dear @momz Thanks good Still in w/w stage? There any new?" + (show)

Dear Sonia 85,
Yes I am w/w still.
I do have ulcers on my tongue that have been constant for a month now.
Nothing severe. Occasionally I get a quick surge of pain I my hip?
How about you?
Brenda ❤️

sonia85 | @sonia85 | Feb 1 10:34am

In reply to @momz "Dear Sonia 85, Yes I am w/w still. I do have ulcers on my tongue that..." + (show)

Dear @momz
Actually my husband seems in the reports that had absolute netropenia with high upper normal limit of lymphocytes
, so they said u should make bone marrow test in the next week so we are to wired about the case am in a fear😓, do you have high lymphocytes?
Thanks good that u are good 🙏🏻🙏🏻🙏🏻

momz | @momz | Feb 1 11:03am

In reply to @sonia85 "Dear @momz Actually my husband seems in the reports that had absolute netropenia with high upper..." + (show)

Sonia,
I am sorry to hear of your concerns for your husband. Tests and waiting are very difficult.
I have low wbc and my BMB showed clonal rearranged T cells from 2021. Some days I want more info and others I think just be grateful I’m great as of now.
I wish all good thoughts and outcomes for your husband. You are never alone in this journey and I hope you find comfort in conversation as I do.
Brenda ❤️

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