1. < Digestive Health

Feedback on Linzess for Irritable Bowel-C or Chronic Constipation

Posted by sue225 @sue225, Mar 9, 2019

I have both of the above-conditions. Took Linzess, (called Constella in Canada) and got terrible stomach pain. Feeling desperate and thinking about trying it one more time. Interested in hearing what kind of experiences other people have had with linaclotide/linzess.

Interested in more discussions like this? Go to the Digestive Health Support Group.

bellacosi | @bellacosi | Jan 28 8:29am
In reply to @marcia115 "Hikeema123, do you have to have a script for the senna liquid? When I had lung..." + (show)
@marcia115

Hikeema123, do you have to have a script for the senna liquid? When I had lung cancer and
after radiation I got gerd, which I have never had before, I am 82 and never had it. I really just
take 7up to try and burp, sometimes it stays with me for a couple days. I was going to buy
tums the other day, but I didn't, I am so afraid pills make my costipation worse. for you I would
tell you to sleep with your head raised a little, not lay flat. as for gerd I really don't no what to take because I am new at it. your gastro Dr. should be able to help you.
marcia115

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I am 85. Take 2 Gas-X in AM to loosen inside. Senna for me is a pill.

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christine5 | @christine5 | Jan 28 8:41am

I have both conditions as well, I have found that Linzess works way too well, couldn't really leave the house, taking trulance now, not as effective but still works

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rka19 | @rka19 | Jan 28 7:39pm

Tried it for 1 week. I got cramps about 10 minutes before I emptied my bowel. However, I still dribbled throughout the day. No way I could leave my house.
Also, Amatiza which you take with food kept me at home as well.

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beracha | @beracha | Jan 29 4:46pm

Hi. Yes, I took Linzess when it first came out. Tried difft mg but cramps were terrible. I switched to Amitiza and I am tons better. I use stool softener 100mg in morn and 100 at night. Hope this helps.

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1 reply
mariajean03 | @mariajean03 | Jan 30 1:35pm
In reply to @beracha "Hi. Yes, I took Linzess when it first came out. Tried difft mg but cramps were..." + (show)
@beracha

Hi. Yes, I took Linzess when it first came out. Tried difft mg but cramps were terrible. I switched to Amitiza and I am tons better. I use stool softener 100mg in morn and 100 at night. Hope this helps.

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That does help! I want to get by on stool softeners if I can. Thanks.

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beracha | @beracha | Jan 30 3:42pm

Just wanted to let u know I was told no more than 300mg for few days if constipated. Softener is by far safest . Good luck.

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marcia115 | @marcia115 | Jan 30 5:54pm

bellacosi I have been taking every morning for many years miralax and your right it does nothing
but give me a lot of Gas when I wake up in the morning. I started to take a softener at bed, but that
does very little. I have a script for senna but I didn't want to takeout everyday, It is not like I sit all day
I walk a lot. maybe I should take 2 senna's. I just give up!!!!!
marcia115

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1 reply
rka19 | @rka19 | Feb 1 10:15am
In reply to @marcia115 "bellacosi I have been taking every morning for many years miralax and your right it does..." + (show)
@marcia115

bellacosi I have been taking every morning for many years miralax and your right it does nothing
but give me a lot of Gas when I wake up in the morning. I started to take a softener at bed, but that
does very little. I have a script for senna but I didn't want to takeout everyday, It is not like I sit all day
I walk a lot. maybe I should take 2 senna's. I just give up!!!!!
marcia115

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Thanks all. My GI doc put me on Citricil at night and Miramax in am. I do suffer with both. Once my stool plug comes out I have diarrhea at least 3 times during the day. I take no pre or probiotics. I only eat soda crackers when I need to leave the house. Do I doctor shop as mentioned Linzess and Amitiza. Been trying to control things for 2 years now.

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1 reply
banks1025 | @banks1025 | Feb 2 6:19am

The medication works well until my kidney transplant, now it doesn’t work for me.

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1 reply
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Feb 2 7:08am
In reply to @banks1025 "The medication works well until my kidney transplant, now it doesn’t work for me." + (show)
@banks1025

The medication works well until my kidney transplant, now it doesn’t work for me.

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Good Morning, @banks1025. I want to extend my Welcome to Connect to you. I see that you are a kidney transplant recipient and and as a transplant recipient myself, I know how our medications can act differently after our transplant. If you have not done so, please discuss this with your transplant team.

Here is the link to the transplant Support Group where others with organ transplants are sharing about their experiences. To make it easy for you as a new member, I am going to invite you to that group. You should be getting a notification from me that will take you diretly to that conversation. or you can use this link:
- What are other transplant recipients doing for constipation?
https://connect.mayoclinic.org/discussion/constipation-7/
I will look for you there.

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