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DiscussionI just discovered I have leukemia
Blood Cancers & Disorders | Last Active: Apr 24 10:40am | Replies (38)Comment receiving replies
Replies to "My husband was just diagnosed with CLL and I am a nervous wreck. We were hoping..."
Good morning @joeeduffy.joeeduffy
My best friend just learned her husband has leukemia as well. The emotional reactions to such news are totally devastating and destabilizing. I want to reiterate the importance of what others have said, that this should be treatable and you both should be equipped with information about his type of leukemia. Itâs called chronic because many people live with it for many years and live well. I would also caution you against trying to change too many things out of desperation. Itâs not necessary and just adds more stress in your lives. Quitting smoking and getting the sleep apnea treated adequately are 2 important steps, but extreme diet changes are probably not necessary. Gradual steps toward a healthier diet over time are fine.
My friend is going through the same stages of shock. I wrote a poem that expresses the initial reaction to such scary news that can be found on
https://allpoetry.com. Just put in search for Slkanowitz, click on my name and scroll down to poem titled Hard Copy. It only describes the initial reaction but thereâs so much hope going forward for you both. Surround yourself with positive thoughts, people and loving support.
Good morning, @joeeduffy and welcome to Connect. I think youâve found the support group for your husbandâŠand you! Most of us in the blood cancer & disorder group have had our own personal experiences or are supporting family members with an illness and weâre here to offer encouragement and hope.
Your husband has been diagnosed with Chronic Lymphocytic Leukemia (CLL) Fortunately, this is usually a very slowly developing form of leukemia. Your husband may not even need treatment for many years depending on the stage of his disease. When needed, there are treatments which can help slow the progression, giving many patients a long and healthy life.
I firmly believe that knowledge is power. You gain control over this diagnosis when itâs no longer a mystery. Here are several articles that discuss CLL and treatments when needed:
and https://www.verywellhealth.com/chronic-lymphocytic-leukemia-7551732
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https://www.verywellhealth.com/chronic-lymphocytic-leukemia-causes-5210846
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https://www.healthline.com/health/chronic-lymphocytic-leukemia-cll
There are a number of fellow members who also have CLL with several discussions within the group:
Here is one of those discussions:
CLL leukemia: Just diagnosed, what can be done?
https://connect.mayoclinic.org/discussion/cll-leukemia/
Youâll meet @kegraves @justinesmith @5gk @rlybolt and other members with CLL.
Many more can be found by typing in CLL or Chronic Lymphocytic Leukemia in the search bar. Donât hesitate to jump into any conversation.
I know youâre worried how life will change for you and your husband with infection risk. With a blood cancer your husbandâs immune system might not be as robust so itâs important to avoid illness. It might be advisable to wear masks in public settings such as crowed stores, church, elevators, etc. Use hand sanitizer after pumping gas, using door handlesâŠthat type of thing. Travel is fine, just wear an N-95 or KN-95 mask on planes and take some sanitizing wipes along to wipe down seat belts, trays, switches, armrests so that you are in control of your environment. I had an aggressive form of leukemia requiring a stem cell transplant, but I am cancer free now. However, I still use all the safety protocol when out in public. Even in our home family, friends and workmen are asked to mask up. Itâs second nature now.
Thereâs so much hitting you and your husband right now. It just clips you off at the knees! But youâre going to find out as you get into this that your lives will fall into a routine and youâre both going to be able to exhale again.
It will be helpful to sit down and talk with your husbandâs doctor. Does your husband have a followup appointment?