The migraine passed, thank you. I realized I got viral meningitis again (fourth time) when I got my IVIG infusion on Saturday. That's why the migraine, stiff neck, fever, nausea, chills, etc. I have to get IVIG every three weeks because my immune system doesn't work anymore. I really am in pretty bad shape. But I went off sugar five years ago and I feel like I'm at least half my age since I did that. As sick as I am - I still feel like I'm in my 30s since ditching sugar.
Welcome to Connect @beckymattair.
I moved your message to this discussion (Looking for others with Pituitary Adenoma) where we have several members talking about this, and I thought it would be beneficial for you to be introduced them. Simply click VIEW & REPLY in your email notification to find your post.
Hi...I can't believe that I am not alone in my suffering. I need help finding a doctor who knows how to deal with the issues caused by my pituitary adenoma. Diagnosed w 7mm adenoma in 2012 and suffering extreme headaches, syncope , weight gain and dizziness. Severe problems with eyesight. My memory and ability to find words is terrible. Please give suggestions for someone who can help me as the doctors here don't know what to do or they tell me that pituitary adenoma have no symptoms. I know my body and I know what I have gone through. Trigemiinal neuralgia and severe one sided headaches lasting 3 to 5 days. PLEASE HELP...Thamick
Hi...I can't believe that I am not alone in my suffering. I need help finding a doctor who knows how to deal with the issues caused by my pituitary adenoma. Diagnosed w 7mm adenoma in 2012 and suffering extreme headaches, syncope , weight gain and dizziness. Severe problems with eyesight. My memory and ability to find words is terrible. Please give suggestions for someone who can help me as the doctors here don't know what to do or they tell me that pituitary adenoma have no symptoms. I know my body and I know what I have gone through. Trigemiinal neuralgia and severe one sided headaches lasting 3 to 5 days. PLEASE HELP...Thamick
Hi, my husband had surgery 3 years ago. He had adenoma removed. I tell that in combination with Endocrinologist and and his surgeon he is doing great. I tell you best thing even if you do not live in miami,still come and see the doctor. University of miami/Jackson Memorial can help. Please even if just to get 2nd opinion do it, I also tell you our faith in God has Cristian evangelist made everything possible.
Hi, my husband had surgery 3 years ago. He had adenoma removed. I tell that in combination with Endocrinologist and and his surgeon he is doing great. I tell you best thing even if you do not live in miami,still come and see the doctor. University of miami/Jackson Memorial can help. Please even if just to get 2nd opinion do it, I also tell you our faith in God has Cristian evangelist made everything possible.
Hello @thamick and welcome to Mayo Clinic Connect. I am so glad you found Connect and this discussion that has allowed to you to feel less alone in your healthcare journey.
If you are interested in including Mayo Clinic in your list of options for a second opinion, experts at Mayo Clinic can help you navigate your healthcare journey, answer your questions, and guide you through the treatment plan. When you call at any of our 3 campuses, you will be offered an appointment within 48 hours http://mayocl.in/1mtmR63. Be sure to mention the Cerebrovascular 48-Hour Access Program.
Yes. I had 2 pituitary surgeries at mayo in Jacksonville 12/19 and 4/7/20. Both unsuccessful. I was diagnosed with Cushing disease and ended up having both adrenal glands removed 5/7/20. I am still having problems and losing hope. 3/13/21 cheryl
Yes. I had 2 pituitary surgeries at mayo in Jacksonville 12/19 and 4/7/20. Both unsuccessful. I was diagnosed with Cushing disease and ended up having both adrenal glands removed 5/7/20. I am still having problems and losing hope. 3/13/21 cheryl
I am sorry to hear you are feeling so bad.My husband was diagnosed with pituitary adenoma, and diagnosed with Cushing disease, he had surgery and had pituitary adenoma removed and where his was the doctor said possibility might not get it all but so far nothing everything is fine. He does go every 6 to a year to Endocrinologist for follow up. He was told that if it return he couldn't have a 2nd surgery and maybe he will be able to do mega knife. But that is why go and see the doctor I posted for another opinion.
Yes. I had 2 pituitary surgeries at mayo in Jacksonville 12/19 and 4/7/20. Both unsuccessful. I was diagnosed with Cushing disease and ended up having both adrenal glands removed 5/7/20. I am still having problems and losing hope. 3/13/21 cheryl
Hello @thamick and welcome to Mayo Clinic Connect. I am so glad you found Connect and this discussion that has allowed to you to feel less alone in your healthcare journey.
If you are interested in including Mayo Clinic in your list of options for a second opinion, experts at Mayo Clinic can help you navigate your healthcare journey, answer your questions, and guide you through the treatment plan. When you call at any of our 3 campuses, you will be offered an appointment within 48 hours http://mayocl.in/1mtmR63. Be sure to mention the Cerebrovascular 48-Hour Access Program.
Yes... I will keep you updated and I plan on taking your advice and will reach out to these specialists. At least this takes a huge weight off my shoulders because now I feel like I have options other than doctors around here who make me feel crazy when I talk about the various issues I have with severe headaches, passing out and weight gain. Can high cortisol levels cause someone to gain over 100 lbs since being diagnosed???? Severe headaches are excruciating and does lead to depression and anxiety. Thank you so much for giving me this info! Go bless you all and thanx again!!! Thamick
High cortisol definitely will cause huge weight gain in short amount of time. The gain will be mostly around your abdomen. Also muscle wasting is a good sign too.
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The migraine passed, thank you. I realized I got viral meningitis again (fourth time) when I got my IVIG infusion on Saturday. That's why the migraine, stiff neck, fever, nausea, chills, etc. I have to get IVIG every three weeks because my immune system doesn't work anymore. I really am in pretty bad shape. But I went off sugar five years ago and I feel like I'm at least half my age since I did that. As sick as I am - I still feel like I'm in my 30s since ditching sugar.
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1 ReactionHi...I can't believe that I am not alone in my suffering. I need help finding a doctor who knows how to deal with the issues caused by my pituitary adenoma. Diagnosed w 7mm adenoma in 2012 and suffering extreme headaches, syncope , weight gain and dizziness. Severe problems with eyesight. My memory and ability to find words is terrible. Please give suggestions for someone who can help me as the doctors here don't know what to do or they tell me that pituitary adenoma have no symptoms. I know my body and I know what I have gone through. Trigemiinal neuralgia and severe one sided headaches lasting 3 to 5 days. PLEASE HELP...Thamick
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Helpful -
Hug
2 ReactionsHi, my husband had surgery 3 years ago. He had adenoma removed. I tell that in combination with Endocrinologist and and his surgeon he is doing great. I tell you best thing even if you do not live in miami,still come and see the doctor. University of miami/Jackson Memorial can help. Please even if just to get 2nd opinion do it, I also tell you our faith in God has Cristian evangelist made everything possible.
Here both doctor information, keep in touch.
Neurologist: Ronald Bienveniste 305 243-6946
U Sylvester 3rd Floor
rbenveniste@med.miami.edu
Endocrinologist: Dr Atil Kargi
UM Endocrinologist
305 243-3636
Same place has neurologist.
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1 ReactionThank you so much for the info and God bless you all. I have felt so alone trying to get answers. Your story inspires me and gives me hope.
Hello @thamick and welcome to Mayo Clinic Connect. I am so glad you found Connect and this discussion that has allowed to you to feel less alone in your healthcare journey.
If you are interested in including Mayo Clinic in your list of options for a second opinion, experts at Mayo Clinic can help you navigate your healthcare journey, answer your questions, and guide you through the treatment plan. When you call at any of our 3 campuses, you will be offered an appointment within 48 hours http://mayocl.in/1mtmR63. Be sure to mention the Cerebrovascular 48-Hour Access Program.
Will you please update us along your journey?
Yes. I had 2 pituitary surgeries at mayo in Jacksonville 12/19 and 4/7/20. Both unsuccessful. I was diagnosed with Cushing disease and ended up having both adrenal glands removed 5/7/20. I am still having problems and losing hope. 3/13/21 cheryl
I am sorry to hear you are feeling so bad.My husband was diagnosed with pituitary adenoma, and diagnosed with Cushing disease, he had surgery and had pituitary adenoma removed and where his was the doctor said possibility might not get it all but so far nothing everything is fine. He does go every 6 to a year to Endocrinologist for follow up. He was told that if it return he couldn't have a 2nd surgery and maybe he will be able to do mega knife. But that is why go and see the doctor I posted for another opinion.
University/Jackson Memorial can help. Please even if just to get 2nd opinion
Here both doctor information, keep in touch.
Neurologist: Ronald Bienveniste 305 243-6946
U Sylvester 3rd Floor
rbenveniste@med.miami.edu
Endocrinologist: Dr Atil Kargi
UM Endocrinologist
305 243-3636
Same place has neurologist
Yes... I will keep you updated and I plan on taking your advice and will reach out to these specialists. At least this takes a huge weight off my shoulders because now I feel like I have options other than doctors around here who make me feel crazy when I talk about the various issues I have with severe headaches, passing out and weight gain. Can high cortisol levels cause someone to gain over 100 lbs since being diagnosed???? Severe headaches are excruciating and does lead to depression and anxiety. Thank you so much for giving me this info! Go bless you all and thanx again!!! Thamick
-
Like -
Helpful -
Hug
1 ReactionHigh cortisol definitely will cause huge weight gain in short amount of time. The gain will be mostly around your abdomen. Also muscle wasting is a good sign too.