← Return to Essential Thrombocythemia: Making treatment decisions

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@mdterp76

I started HU once a week for a month, then 2x week for 8 months. This week, I started HU 3x a week. Fatigue and dry skin are my big issues. I have IBS and was worried about stomach issues with HU. I take pre-biotics and probiotics several times per week. I also need iron for low Ferritin. It can be binding, but I eat plenty of fruit and take it with OJ. I've been taking one baby aspirin per day for over 30 years, due to "sticky" blood. In 2023, high platelets resulted in tested that gave me the ET/Jak2 diagnosis. So far, I feel this illness is manageable, but it was very scary at first to learn I needed oral chemo.
Take care!
Karla

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Replies to "I started HU once a week for a month, then 2x week for 8 months. This..."

Thank you so much for your input. That’s where I’m feeling right now is scary as I was given a choice to either start this medication or wait. But my platelets just keep climbing and they’re over 1 million so I’ve decided I’m going to start it I figure everything is in the Lord‘s hands.