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DiscussionHOCM & VFib amiodarone, sotalol,camzyos
Hypertrophic Cardiomyopathy (HCM) | Last Active: Feb 14 4:10pm | Replies (35)Comment receiving replies
Replies to "Thank you for responding . I was at my daughter in NC had just flown in..."
As far as the Sotalol, I went and stayed in the hospital for a few days while the did the Sotalol loading. Low heart rate was the main concern for me, but everything was and has been mostly fine since. It’s a better than Amiodarone, so I did the transition ASAP when things settled down as far as shocks go.
My recommendation for recovery from my experience would be to be patient and listen to your body. When I was right out of the hospital I could barely climb a flight of 6 stairs. In all honesty I didn’t want to climb them because it would make me feel uncomfortable and that would lead to a shock. In essence, I was fighting two battles.
Fast forward a year later and I’m putting in 23,000 steps on a fairly regular basis. No issues except a stray spike in heartbeat, but easily corrected.
I didn’t feel safe driving for a few weeks after my last shock, and still stay off the roads for everyone’s sake if I feel more susceptible to a shock.
When you exercise, however it may be, try a smartwatch (if you don’t have one) to monitor your health metrics. I constantly watch mine when exerting myself more than usual. I can adjust my routine accordingly.
Hopefully some of this will help ease your concerns, and I’m glad to help any way I can. Keep fighting the good fight!