Do you have urinary incontinence after prostatectomy & radiation?

Posted by hmctgraybill51 @hmctgraybill51, Apr 16, 2022

Hello, I underwent a prostatectomy in Sep 2017. Gleason score of 9 with a positive margin. 8 months later began radiation tx with rising PSA. As of this date my PSA's have been undetectable however, I continue to have moderate to severe incontinence. I have seen two urologists with one suggestion the male sling and the other the artificial urinary sphincter for relief. I'm looking for any men with experience in either of these procedures and your comments. Thank You

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Sam60, thanks so much for sharing your details with AMS. The surprises must be terrible both mentally and emotionally. Hope you can find a workaround to prevent such things.
There must be some real variation in the way these things operate. After I find and skin back my penis it takes a fairly hard squeeze to activate AMS. But then it’s great (as long as my aim is decent). And maybe one more good squeeze and I”m empty. My only worry is that the arthritis in my thumb(s) progresses. Even if I have to use a pliers I”m not going to give up.
I hope. You can find some adjustment to the AMS that can hep.

Tomf, I encourage you to keep bugging your friends about PC and to keep checking their PSA. I’ve badgered my two sons, both in their 40’s, till they got a baseline PSA. And same for friends. What surprised me is so many of them also had PC but never mentioned it.

We all gotta spread the word. We could save a life or a life-style.

Good luck to both of you and all our PC brothers. We need it with God’s help.

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Same here, after radiation, AND the Eligard every 6 months. Not really incontinence, just urinating all the time.
Drink a 20 oz bottle of water, pee every 15 mins for 3 hours. Annoying and disruptive. Anyone else have this?

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Please read my previous post. I had this problem and was treated with SANS (Stoller Afferent Nerve Stimulation). Dr. Stoller is vice chair of urology at UCSF and was my doctor. This procedure is non invasive and is widely available. Sort of like a targeted, enhanced acupuncture. It really worked for me.

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@carver

I just completed 45 ,nine weeks of radiation treatments. Now dealing with total incontinent issues. I progressively loss controls over the last few weeks of treatment. Any real hope of regaining some controls as recovery progresses. Do any of the exercises I am reading about help? Any suggestions would be appreciated.

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My husband had 2 rounds of Bulkamed injections after his prostate removal. It’s kind of like Botox. He was very satisfied with it. He most likely will have one more after he finishes radiation.

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@carver

I just completed 45 ,nine weeks of radiation treatments. Now dealing with total incontinent issues. I progressively loss controls over the last few weeks of treatment. Any real hope of regaining some controls as recovery progresses. Do any of the exercises I am reading about help? Any suggestions would be appreciated.

Jump to this post

我的手术是根治,2023年元月7日手术,至今尿失禁。有问过医生吊带和安装人工扩约肌均有问题,所以我不准备这些。现在在做提肛,效果不出院时好些。估计这辈子就是尿袋相伴了

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