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@bobsconnect

I have a fairly rare incurable vascular disease called Wegeners Granulamatosis (GPA) which sometimes manifests itself in the nose. It can also affect the lungs and kidneys. Large scabs appear in the nostrils and with any pressure will bleed. I had scabs 2" long removed by my ENT. I see him regularly for ear infections, insert tubes, blockages that affect my hearing, etc. If untreated it can be fatal. I see a rheumotologist every 3 mo and blood tests to insure it stays in check. The disease appeared to have starved the blood flow to the nerves in my feet and hands causing neuropathy pain. I don't know if this is what you are dealing with but I hope it helps. Took me over 2 years, 40 doctors, and dozens of ER visits before going to a Mayo rhemotologist who had other patients with the same symptoms to diagnose me.

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Replies to "I have a fairly rare incurable vascular disease called Wegeners Granulamatosis (GPA) which sometimes manifests itself..."

Thank you bobsconnect. I haven't been keeping up with discussions and just found your reply to my query about nose scabs. I do not have my doctor investigate the nose scabs. I just clean out the scabs and do it each time the scabs clog my nostril. I am 90 years old now and had removal of BC lesion on my right nostril. It was a tiny thing that looked like a tiny scratch, but the BC went very deep and I have a part of the nostril very thin where the BC lesion was. I am not going to open up my nose and remove parts or all of it if it is more BC. What did your doctor specifically say about your nose scabs or did he say that it was a sure sign of Wegener's GPA?

You might try a product called AYR--- comes in a tiny tube - it is a clear<br>gel that keeps your nostrils moist inside so they do not scab over. It<br><br>takes very little and after a few days you can stop - because hopefully your<br>own system may begin to keep the area moist on it's own. Hope this helps. <br><br>