← Return to HOCM & VFib amiodarone, sotalol,camzyos

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@meryl59

Hello , thank you
It’s a bit complicated. No not on Camzyos yet. 2 nd appointment with that Dr this Friday 2/2.
First I have to get off the amiodarone and be switched to Sotalol which the drs feel a better antiarythmeia drug for me as I’m 64 and was told amiodarone is very toxic if on too long. This has to be done in hospital for 3 days observance . No date yet when this will happen. Cardiologist coordinating .
My other meds are carvedilol ,fenofibrate, rosuvastatin, low dose aspirin, furesimide, nifedipine & losartin.
Definitely getting weight gain and swelling in legs . My current symptoms are extreme shortness of breath, light headed , dizzy spells , anxiety,which all seem to be the same as Camzyos ? From what I read . I was very active dancing , swimming , enjoying . Now I push to walk around the block . Just not sure what to do . Appreciate any and all. Got a lot of living to do ya know?

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Replies to "Hello , thank you It’s a bit complicated. No not on Camzyos yet. 2 nd appointment..."

Hi @meryl59 and welcome. There's a great support community here, as you have already discovered. I'm relieved to say that I have not had to endure the issues you, @irishpeaks and others have experienced with defib. I can only imagine how unpleasant that would be. Since you mentioned Camzyos, please check out the thread below. While it doesn't work for everyone, for me it has been life-changing (sorry for the hyperbole, but it's true). The current symptoms you list were with me for 17 years, getting progressively worse, and within 2 weeks of Camzyos they disappeared completely. Hopefully, if you end up on Camzyos, you will have the same kind of response I did. Best wishes as you negotiate this difficult time.
https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/