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DiscussionHOCM & VFib amiodarone, sotalol,camzyos
Hypertrophic Cardiomyopathy (HCM) | Last Active: Feb 14 4:10pm | Replies (35)Comment receiving replies
Replies to "Hello , thank you It’s a bit complicated. No not on Camzyos yet. 2 nd appointment..."
Hi @meryl59 and welcome. There's a great support community here, as you have already discovered. I'm relieved to say that I have not had to endure the issues you, @irishpeaks and others have experienced with defib. I can only imagine how unpleasant that would be. Since you mentioned Camzyos, please check out the thread below. While it doesn't work for everyone, for me it has been life-changing (sorry for the hyperbole, but it's true). The current symptoms you list were with me for 17 years, getting progressively worse, and within 2 weeks of Camzyos they disappeared completely. Hopefully, if you end up on Camzyos, you will have the same kind of response I did. Best wishes as you negotiate this difficult time.
https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/