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Essential Thrombocythemia: Making treatment decisions
Blood Cancers & Disorders | Last Active: Sep 15 11:57am | Replies (160)Comment receiving replies
That was a clever way to start HU, I was put on 500 mg daily resulting in daily headaches, lightheadness. I am now taking it 4 days a week.
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I started HU once a week for a month, then 2x week for 8 months. This week, I started HU 3x a week. Fatigue and dry skin are my big issues. I have IBS and was worried about stomach issues with HU. I take pre-biotics and probiotics several times per week. I also need iron for low Ferritin. It can be binding, but I eat plenty of fruit and take it with OJ. I've been taking one baby aspirin per day for over 30 years, due to "sticky" blood. In 2023, high platelets resulted in tested that gave me the ET/Jak2 diagnosis. So far, I feel this illness is manageable, but it was very scary at first to learn I needed oral chemo.
Take care!
Karla