Anal Squamous Cell Carcinoma

Posted by zobesca @zobesca, Feb 22, 2023

Has anybody with squamous cell carcinoma on the inside of your body had it metastasize? I 'just started immunotherapy and wondering if anybody else has followed this path.

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samclembeau | @samclembeau | Oct 19, 2023

has anyone done the new low dose chemoradiation? how is it going. how severe are the side effects?

samclembeau | @samclembeau | Oct 20, 2023

can i ask what immunotherapy you are doing and where?

Colleen Young, Connect Director | @colleenyoung | Oct 30, 2023

In reply to @samclembeau "can i ask what immunotherapy you are doing and where?" + (show)

Sam, I believe your question was for @zobesca. Looking back through their comments, they were on the immunotherapy called pembrolizumab, which stopped working for them.

Sam, have you decided to move forward with chemoradiation?

samclembeau | @samclembeau | Nov 1, 2023

In reply to @colleenyoung "Sam, I believe your question was for @zobesca. Looking back through their comments, they were on..." + (show)

looks like I have no alternative.
will contact oncologist soon

princessjilly | @princessjilly | Jan 28 3:24am

First time on here. Have just been diagnosed with Anal Squamous Cell cancer stage 2b. From tests done it has not metastisized to any other area. Am meant to already have started Chemo and Radiation but have put it off for a few weeks making decisions. Im nearly 72 and have emphysema so just dont know if I would survive the treatment . Does anyone have any ideas about this?

rioa21 | @rioa21 | Jan 28 7:52am

In reply to @princessjilly "First time on here. Have just been diagnosed with Anal Squamous Cell cancer stage 2b. From..." + (show)

I too have had squamous cell cancer in the anus. I had 6 weeks of chemo and radiation. The radiation was much more difficult for me to handle than the chemo. The burns and diarrhea were very difficult and painful. The radiation destroyed my sphincter muscle and left me with fecal incontinence. That resulted in me having a colostomy. I am now 3 months post op. I am going to be 74 on my next birthday. It’s a hard call to make. I was diagnosed cancer free in September.

princessjilly | @princessjilly | Jan 28 10:35pm

In reply to @rioa21 "I too have had squamous cell cancer in the anus. I had 6 weeks of chemo..." + (show)

Thanks for reply rio21, I hope things continue to improve for you. Still got till next Monday to let oncologist know my decision. Just getting as much info as I can to make that decision.

terrymayo50 | @terrymayo50 | Jan 31 5:07pm

In reply to @rioa21 "I too have had squamous cell cancer in the anus. I had 6 weeks of chemo..." + (show)

Will you have to wear the colostomy bag for the rest of your life?
I am your age and also diagnosed with Squamous cell cancer in my anus

rioa21 | @rioa21 | Jan 31 5:34pm

In reply to @terrymayo50 "Will you have to wear the colostomy bag for the rest of your life? I am..." + (show)

Yes, Libby my ostomy, is forever. I named her Libby because she liberated me from the bathroom! Honestly, it’s not so bad. Once you find the right supplies and feel comfortable with what has to be done, it becomes second nature.

celia16 | @celia16 | Feb 1 6:33pm

In reply to @princessjilly "First time on here. Have just been diagnosed with Anal Squamous Cell cancer stage 2b. From..." + (show)

@princessjilly ,
How is the decision making coming along? I don’t have anything to offer on this, but I hope you find the option that’s best for you. I’ll look forward to seeing your updates. 🧸