This is good information. I too have this diagnosis. I am glad to hear you have a relationship with a hematologist. I had a bone marrow biopsy that confirmed the issue (if you have to experience this absolutely request to be put to sleep). I take Hydroxyurea daily (chemo drug) to control the production of platelets and aspirin daily to reduce clotting. It has been four years and mine is 'controlled'. I understand this regimen is for the rest of my days and could still live a long life. Adjusting to the drug wasn't like a chemo treatment - no side effect of hair loss, etc. I get tired like you say but try to do things early in my day. I get to the point of clumsiness (yes, bruise easily) or leg aches and know it is time to take a break in the day. Have learned to love my naps (with my little terrier). He leads the way some days. LOL