Endometrial S1A micrometastases sentinel lymph node

Posted by carmenc1955 @carmenc1955, Jan 9 12:27pm

Spotted for 9 mo, Dr thought spotting related to Graves disease and methimazole because endometrium was a normal 4mm thick. Complete hysterectomy cancer 1A, but micrometastases in left sentinel node, out of 9 lymph nodes removed. Micrometastases changes stage to 3. Beginning Chemo soon, has anyone experienced same diagnosis? I'm scared...

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

@carmenc1955

Sorry for late reply, my first infusion was Jan 23. Not much nausea, however, I have almost unbearable bone pain. I have Degenerative Disc Disease, so I'm wondering if the DDD has made the side affect of bone pain worse than usual. The oncologist prescribed 3 days of steroids and some oxycodone 5 for break through pain. I am hoping this helps. I have never experienced pain 9/10 before. I was prepared to have severe nausea, but was unaware of the possibility of severe bone pain. Ice packs on my legs have provided some relief. I have also used heat, however, cold helps me more. I welcome any suggestions to help with deep bone pain from Chemo. Thanks

Jump to this post

@carmenc1955 I'm hoping too that the steroids and oxycodone helps with the pain. Most of us think of nausea when you get chemotherapy but not the bone pain that you are experiencing. I'm going to search through Mayo Clinic Connect and see if any of our members have experienced this and can give you some suggestions.

REPLY
@carmenc1955

Sorry for late reply, my first infusion was Jan 23. Not much nausea, however, I have almost unbearable bone pain. I have Degenerative Disc Disease, so I'm wondering if the DDD has made the side affect of bone pain worse than usual. The oncologist prescribed 3 days of steroids and some oxycodone 5 for break through pain. I am hoping this helps. I have never experienced pain 9/10 before. I was prepared to have severe nausea, but was unaware of the possibility of severe bone pain. Ice packs on my legs have provided some relief. I have also used heat, however, cold helps me more. I welcome any suggestions to help with deep bone pain from Chemo. Thanks

Jump to this post

Hi. I had bone pain for two of the six cycles of chemo after the second cycle it stopped. I took Claritin (recommended by md) before and a couple of days after fir pine pain and that helped. Am hoping yours goes away soon as well

REPLY
@aardvark2118

Hi. I had bone pain for two of the six cycles of chemo after the second cycle it stopped. I took Claritin (recommended by md) before and a couple of days after fir pine pain and that helped. Am hoping yours goes away soon as well

Jump to this post

Thanks for your update. I too am taking Claritin. This is the 4th day after my 1st infusion. The oncologist added pain meds and steroidsand I feel my pain is finally undercontrol. I don't want to take too many pain meds bc I've read that side effects get worse with each infusion and I don't want pm to stop working. Thank you for sharing as your share has given me hope♡

REPLY
@carmenc1955

Thanks for your update. I too am taking Claritin. This is the 4th day after my 1st infusion. The oncologist added pain meds and steroidsand I feel my pain is finally undercontrol. I don't want to take too many pain meds bc I've read that side effects get worse with each infusion and I don't want pm to stop working. Thank you for sharing as your share has given me hope♡

Jump to this post

I forgot to add the bone pain stopped after cycle 2 so sending you positive energy the same holds true for you!!!

REPLY
@aardvark2118

I forgot to add the bone pain stopped after cycle 2 so sending you positive energy the same holds true for you!!!

Jump to this post

That's great news! Really gives me encouragement to battle thru...

REPLY
@carmenc1955

Sorry for late reply, my first infusion was Jan 23. Not much nausea, however, I have almost unbearable bone pain. I have Degenerative Disc Disease, so I'm wondering if the DDD has made the side affect of bone pain worse than usual. The oncologist prescribed 3 days of steroids and some oxycodone 5 for break through pain. I am hoping this helps. I have never experienced pain 9/10 before. I was prepared to have severe nausea, but was unaware of the possibility of severe bone pain. Ice packs on my legs have provided some relief. I have also used heat, however, cold helps me more. I welcome any suggestions to help with deep bone pain from Chemo. Thanks

Jump to this post

When I was on chemo I always took a Claritin pill the night before treatment and continued it for 4 days afterwards. My nurse at the infusion center told me to do this. It helped greatly with the bone pain. Hope this helps.

REPLY

Thank you , they told me to take one to take one when I got home, but will definitely take one the night before. Thank you again

REPLY

I was diagnosed with endometrial cancer in 1996 followed by a complete hysterectomy. I was told it was Stage 1 non aggressive and did not penetrate the uterine wall. Six years later I had a metastasis attached to my outer colon and hip bone. Surgery removed the portion of my colon where it was but there were a lot of cancer cells on my hip bone. That was in 2002. I had the best radiation oncologist I could ever ask for. He said he had to give me very strong radiation that could cure me or kill me but there was no alternative because of the severity of the metastasis which was the size of a tennis ball. I honestly made peace with the situation and the possibilities. I have a strong faith which kept me sane. I was quite ill during radiation and for a couple of years after. Then I began a slow recovery and finally was able to lead a pretty normal life except for the effects of the colon resection which caused a lot of IBS. But here it is 2024 and I'm here writing to you. That's 20 years later! We don't know what our future holds. Take one day at a time. There were times I had to take one hour at a time. I never had chemo for it so I can't speak to that issue, sorry. My prayers for your return to good health.

REPLY
@chrissiebee

I was diagnosed with endometrial cancer in 1996 followed by a complete hysterectomy. I was told it was Stage 1 non aggressive and did not penetrate the uterine wall. Six years later I had a metastasis attached to my outer colon and hip bone. Surgery removed the portion of my colon where it was but there were a lot of cancer cells on my hip bone. That was in 2002. I had the best radiation oncologist I could ever ask for. He said he had to give me very strong radiation that could cure me or kill me but there was no alternative because of the severity of the metastasis which was the size of a tennis ball. I honestly made peace with the situation and the possibilities. I have a strong faith which kept me sane. I was quite ill during radiation and for a couple of years after. Then I began a slow recovery and finally was able to lead a pretty normal life except for the effects of the colon resection which caused a lot of IBS. But here it is 2024 and I'm here writing to you. That's 20 years later! We don't know what our future holds. Take one day at a time. There were times I had to take one hour at a time. I never had chemo for it so I can't speak to that issue, sorry. My prayers for your return to good health.

Jump to this post

@chrissiebee Thank you so much for sharing your story. May you have many more years.

REPLY
@chrissiebee

I was diagnosed with endometrial cancer in 1996 followed by a complete hysterectomy. I was told it was Stage 1 non aggressive and did not penetrate the uterine wall. Six years later I had a metastasis attached to my outer colon and hip bone. Surgery removed the portion of my colon where it was but there were a lot of cancer cells on my hip bone. That was in 2002. I had the best radiation oncologist I could ever ask for. He said he had to give me very strong radiation that could cure me or kill me but there was no alternative because of the severity of the metastasis which was the size of a tennis ball. I honestly made peace with the situation and the possibilities. I have a strong faith which kept me sane. I was quite ill during radiation and for a couple of years after. Then I began a slow recovery and finally was able to lead a pretty normal life except for the effects of the colon resection which caused a lot of IBS. But here it is 2024 and I'm here writing to you. That's 20 years later! We don't know what our future holds. Take one day at a time. There were times I had to take one hour at a time. I never had chemo for it so I can't speak to that issue, sorry. My prayers for your return to good health.

Jump to this post

Thank you for sharing you courageous story with me. 20 years is a long time and I am grateful that overall, you have lived a pretty normal life. You and all those who have kind enough to share their cancer journeys have given me courage, grace and faith that that I will grow old enough see my grandchildren graduate from high school and possible college as I am 68 yrs young! Thank you and God Bless.

REPLY
Please sign in or register to post a reply.