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Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: Feb 22 1:06pm | Replies (294)Comment receiving replies
I go to. Naturopath to have ozone treatment and vitamin C IV once a week. It’s expensive and cannot say for sure if it’s helping or not. I take some supplements but these are from the naturopathic doctor who is also an MD. My oncologist advises me to lose weight and limit sugar which is really difficult for me. Years ago, one of his patients went on an all plant diet and the problem went away. Could not remember patients name as it was over 20 years ago. Must have done more than just a plant based diet. So far, I am just tired too. Oncologist doesn’t have much to say when I go. Labs are drawn and my spleen is felt. The latter is getting bigger and I am told once symptoms arise, then I shall get treatment. Other than that, nothing. I worry though.
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Hi Elaine,
I'll have to investigate ozone/Vit C IVs. I've been drinking loose leaf green tea for over a decade, averaging about 64oz a day (multiple steeps - so not as much caffeine as it would be otherwise). Obviously, this did not stop my condition from appearing. I have zero idea if this has any impact but I have no intent to stop until the docs tell me I need to. 🙂
My spleen is around 17cm - my doc said that's about 4cm larger than normal. This is my new baseline to watch & see how quickly/slowly it gets bigger. As we don't have more than 2 months of data, my doc wants blood tests once a month for now to see how things are trending.
There is obviously so much that is not known within the medical complex about how to deal with this. It's too bad that we each need to guess on what to do. I do think that we are on the precipice of new genetic drugs within the next few years. I do hold out hope that we will be able to benefit from them!
Btw, for me, a way that worked to change and establish a new diet (and reduce/eliminate some bad choices) was going on a trip. Being in a new place seemed to make it easier, and when I came back it then seemed easier to keep up the new diet.
Paul