← Return to Prolia Side Effect: Edema

Discussion

Prolia Side Effect: Edema

Osteoporosis & Bone Health | Last Active: Feb 5 3:00pm | Replies (26)

Comment receiving replies
@kjane322

I just got my 5th Prolia injection yesterday. Awoke this morning in tears. The 4th injection was not as bad as the 3rd so I thought that I might be adjusting to the medication. I was wrong. I’m in such pain this morning it’s surprising to me. My arms and wrists are weak and burning. My hips and lower back are burning. My legs are burning and feel so heavy to move while walking. My image in my thoughts are like I’ve been poisoned. Why do I keep doing this to myself……isn’t quality of life in old age important? How do I know if this is right or wrong. Each person is different yet the same. Why do I keep trying to be stronger when the human body is not ever designed to go on forever….

Jump to this post


Replies to "I just got my 5th Prolia injection yesterday. Awoke this morning in tears. The 4th injection..."

@kjane322 we do these meds to avoid the pain and disability of fracture 🙂 Do these symptoms last for you or are they for a few days? Can you transition (carefully, with blood tests) to a bisphosphonate and then take a break, if your scores are "good enough"? I hear you- we are between a rock and a hard place with few good options.

Hi,
I am so sorry for all your pain. I believe you, and you know your body. I also feel like this has affected my body. Our bodies can only take so much. You are dealing with not only the physical but the mental emotions. What does your doctor say?

I have seen two doctors. Both said there are no side effects. Really ???

Peace

I am sorry you are having these issues with Prolia. Perhaps a consult with another physician might be beneficial. If you are being treated by an endocrinologist, maybe try a rheumatologist? Or the other way around. It's been my experience that going to a different hospital system, preferably in a different city results in a better second opinion. Only you know how your body reacts to certain medications. While the majority of people in a study might have positive results with a medication, there often are a number of people who have negative reactions. But they do. And they shouldn't be disregarded. If you think your symptoms are the result of this medication, your doctor needs to listen to you and work with you to find an alternative. I wish you well and hope you can soon find relief.