← Return to Joint Pain after Organ Transplant

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Joint Pain after Organ Transplant

Transplants | Last Active: Oct 9 8:39am | Replies (85)

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@rosemarya

I hope that many of you have experienced a relief from the joint pain that brought you to this discussion. I also hope that this new year is going well for you. I invite you to share your experiences and any questiins or updates:

@johnnybroom, Are you finding any relief from your pain and locking fingers? Do your doctors say if it is related to the transplant meds? Have the doctors suggested the a remedy?

@eggnog24, I decided to check in on you because I am wondering how you are getting along since you last posted here. I am long time off prednisone, but I do get stiff and feel some pains, so my PCP is quick to remind me that I'm not 50 anymore. He recommends stretching and it helps to ease any pain or stiffness thatI feel. Was stopping the prednisone the reason for the pain?

@footballmum, How are you doing? I see that you mentioned RA, so I am curious whether you have RA and if your transplant medications have had any effect on your treatment?

@gphetteplace, How is this new year treating you and your kidney? Are you having success with your dietary mindfulness and water intake? Do you have any tips to share as to how you monitor your water intake each day?

@beracha, Have you started taking a statin yet? Did your PCP go along with the choice of the transplant team?

@grateful76, Has your joint pain diminished, yet? How are you adjusting to living with your transplant? Have you had your annual evaluation yey?

@lauradowning, Has your severe joint pain eased since your Jan. 9 post? What have your transplant doctors had to say to you about whether it is related to Tacrolimus?

@jackcurry1, thanks for sharing here which med is working for you. Good news is always welcome! Will you tell us more about your transplant? Jack, What organ did you receive? When was your transplant?

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Replies to "I hope that many of you have experienced a relief from the joint pain that brought..."

Thank u for following up. I have not started statin. I am going to use lipitor . Most people use it? I have not started since I had 4 surgeries last yr and between general anesthesia and antibiotics all yr I wanted to let my body rest. Unfortunately now I am so nauseated I am working on keeping meds down. I have liver duplex. Coming up and scheduled for clinic in 3 weeks. I hope I can start statin then.

Good morning
I do not have RA. I've been to see a rheumatologist and had negative test results. My sister suffers from RA and the symptoms sound very familiar. My liver numbers took an extreme jump about 1 year post transplant and my team were eliminating causes rather than just jumping right in. I do experience some joint pain and was told it is a side effect of the TAC. I am on a low dose and things aren't too bad. Hopefully that made sense.💕