GI Disorder and Internal Shaking

Thank you, i dont believe ive herd of that but im sure gonna try it.

Thank you for the information! About 8 months ago I broke my tailbone. Since then I have also been having difficult large, but regular, hard-to-pass bowel movements. I started having shaking upon waking up. At first I thought it was my heart. But I have a heart rate monitor and it was never irregular or in sync with the tremors/vibrations. It was rapid and I was breathless. I was hospitalized when I also turned out to have had very low hemoglobin and low iron and needed transfusions and iron infusions. As I recovered the tremors kept happening, so I thought it might be bladder cramping that triggered other internal tremors/vibrations, since it happened when I awake and bladder was full. I also thought it might be related to pelvic floor dysfunction or my broken coccyx but I just don’t know and nothing stops it, not any muscle relaxer or any other med tried. It progressed to happening throughout the day. I have noticed a connection between bowel movements, and having stool sort of stuck in my anus (I do have hemorrhoids). Now it is happening almost constantly and I’m sure it’s related to bowel movements but I don’t know who to tell or where to go for help since my heart rate is fine and it’s complicated by all my other medical issues including pelvic floor dysfunction, fractured coccyx, chronic pain, bowel surgery years ago due to peritonitis from diverticulitis which lead to a temporary colostomy bag and then repair surgery which went fine and I recovered well but have also had back issues including herniated discs and sciatic nerve problems and chronic pain. I’m now having numbness and tingling with the tremors/vibrations and it is ascending up my chest and neck to even sensations around the lower half of my face. I don’t know where to turn or how to even explain this to anyone. Thank you for your information!

Same here, I was informed i have diverticulitis, bloating and cramping, no constipation. I used to have IBS-mixed and now it's mostly constipation due to high blood pressure medication. They also claimed that my hbp medication can cause the tremors, in very rare cases. I am going to see a neurologist to ensure its nothing else.

So sorry to read this about you! I read covid has caused some issues like this, along the lines of persistent covid intestinal infection preventing the synthesis of serotonin. No serotonin affects the vagus nerve and can cause dysautonomia. A possible fix is taking SSRIs. Other complications from covid include reactivation of latent viruses or gut dysbiosis. Autoimmune diseases including celiac or even non-celiac seem to have similar effects. I hope you are able to get to the bottom of this!

This sounds exactly like what I have currently the shakes internally are scary I had four ekgs and CT scan of chest with contract iv fluids and now I’m running through allergy testing at Mayo and a stress test. I believe after investigating its food allergy and or histamine flare up related but can’t be certain. Seven years ago I was diagnosed with Pan colitis and cured myself from that with a healthy diet . To book with the internal shakes that only happen at night when I’m trying to sleep I had a uti so I have been on antibiotics for nearly 10 days. The d dimer levels were high so everyone thought possible PE but that God that wasn’t the case. It was a uti… anyway as soon as I figure this out or Mayo I will let you know the out come. If anyone else has feed back that would be great.

Ten years ago I had internal shaking as an undiagnosed symptom for 18 mos. It turned out that it was thought to be a neuro toxin called Ciguterra … it eventually subsided with time, B6 and brown rice ( both help eliminate toxins). Primary symptom was also reversing hot and cold to the touch ( warm water felt cool and vice versa).

It was incredibly challenging to deal with. likely caused by eating eel sushi.

Best to you to find your cause and solution.

Hello, did you ever get a diagnosis on what the symptoms were? I have something similar.

Regarding internal tremors, I found something totally by accident that those of you afflicted by this might want to look into. I started taking a "liver support" pill that I had taken several years ago when I was having problems with a "thickening" in my liver. The pain on my right side started up again a few weeks ago, so I re-ordered this liver support pill. THE FIRST DAY I TOOK IT THE TREMORS ALMOST STOPPED COMPLETELY. There are only a few ingredients in this pill, so I started looking them up individually, as most of them, like Alpha Lipoic Acid, I take on their own already. The main ingredient in this liver support pill is 800 mgs of N-Acetyl Choline (NAC). I have gone for two days with no tremors whatsoever during the day and only a few at night. I couldn't believe this, but I put into search engine, "benefits of N-Acetyl Choline" and the NAC is in there that it helps with tremors. Only downfall for me is it seems to be constipating, but there are many things to find OTC to fix this. I already take Triple Magnesium Complex before bedtime to aid with sleep and regularity and it was working beautifully until I added this liver support pill. I wanted to let everyone know because I found this totally by accident and had no idea it would get rid of the tremors that woke me up to a vibrating bed for over a month.

...good Lord, I'm not alone! 59 years old. 3 years ago I was blue-lighted to hospital having collapsed outside my front door waiting for the ambulance. Turns out I had bilateral pulmonary embolism with no known cause. Given that I had been only hours from death, I was rather disappointed that no culprit was found because it just stands to reason that something somewhere had to have caused it. Anyway, I recovered to a point, but my lungs have never been the same again and I need to use two different inhalers if I do anything too physical. I also have a degenerative back condition...a bulging disc with osteoarthritis above and below, so they refuse to operate saying the risk of doing more damage than good is too high. Another disappointment, which has forced me to grudgingly accept pain and disability as a fact of the rest of my life. I pretty much only concern myself with the day at hand and try not to project too far into the future. I had told my friend jokingly that I had thought of throwing myself off the bridge, but couldn't get my f'ing leg over the wall! Joking, but not joking as, like many in my position, I've had many dark days and have struggled with it all. Prior to the hospital stuff, I'd had a lot of trouble with gallstones, the pain of which was off the scale (took my mind off my back though!) and often made me sick. My mother was visiting from Spain and she was so worried she called the out of hours doctor to come and see me. He immediately diagnosed gallstones and gave me a shot of morphine and arranged an emergency scan. I even saw the offending gallstones in the scan and thought for sure they would operate. However, they said to wait and see and sure enough, the attacks became less frequent until they stopped altogether (Until...) Owing to my mobility issues and being no longer able to stand and prepare my own food, or stand at a cooker, I had been eating a lot of bread and those, mostly horrible, ready meals and soups, I put on a ridiculous amount of weight, which was has just added to my problems jn every conceivable way. My friend told me about the Keto diet and convinced me to give it a try. It wasn't easy, but I stuck to religiously and after four months I lost 4 kilos, but I was also constipated most of the time and I just didn't think it was healthy, so I stopped. That's when the internal tremors started (after eating anything with carbs), which were so bad, they even affected my eyesight and coupled with a fatigue that was causing me to pass out even in the middle of chewing something or taking a drink of coffee. I'd had my annual bloods done the week before and there was nothing of note. The doctor examined me and said I had high blood pressure, but I can put thag down to thd stress of getting to the sufgery with my rollator, and also did a blood glucose test, which she said was off the scale. She sent me home with a testing kit with instructions on how and when to use it. I followed all the instructions and my blood glucose was never out the normal range, so I can only conclude that her test kit must be faulty. She ran another blood test and referred me to the endocrinologist. As instructed, I spoke to another GP a week later and she said all of my bloodworm was normal, so much so, the endocrinology department cancelled my referral. She said "we just don't know why you are experiencing sensitivity to certain foods, but my advice going forward is to cut them out of your diet". And that was that! Yesterday was New Year's Eve and it's a tradition in Scotland to eat shortbread, which I did along with a cream bun and several large (enormous by anyone elses standards) brandy & ice. I thought for sure I was in for a great night's sleep owing to the brandy and 4 different pain meds I take for my back...not a bit of it! I felt the tremors begin in my legs, then rapidly spread throughout my body. My eyes darkened and also began to tremor and on top of this and completely out the blue, I had a gallbladder attack. I literally writhed in pain until everything subsided. Today, New Years Day) well yesterday as it's now 3.45am as I slept most of the day and am now wide awake) I have have had the tremor all day and eaten only fruit and a few nuts to avoid antagonising my gallbladder. I had bought such lovely food for NY too and am scared to eat any of it. So that's my story. I am interested that others have had gallbladder issues as I have wondered all day if the two might be linked. Also a couple of people mentioned tinnitis, of which I have been a lifelong sufferer. Strangely, around the time of my bilateral pulmonary embism, in fact it was the night before, I absolutely felt like I was dying. I had got upstairs to bed on all fours and only just made it to the bed before collapsing. I lay there in the semi dark and firstly, my eyesight went and after a huge crackling sound in my ears, I also went deaf. For sure I thought my time was up, but gradually both came back. I told the consultant about this in the hospital and he said he could dxajn any of it. About a week after I came home, I was watching TV and suddenly it was as though someone turned up the volume of my tinnitis and it's never gone back to normal (my normal) again. I do have a referral to the ENT department fof this, so J wonder if K should ask the consultant about the tremors and now gallbladder issues. Are they all linked? I am so happy to have found this page as now I know I'm not going mad, or rather, getting any madder than I already am! Prior to this, ghe only thing coming up in Google is "Idiopathic Postpandrial Hypoglycemia Syndrom", which you can get even when blood glucose in the normal range. So this thread started in 2021...has anyone got to the root cause of this because it's doing my head in....seriously doing it in as I feel ill all the time. Thanks for reading my long-winded tale of woe and I hope for all our sakes there are answers to be had. Take care xxx

I'm commenting to my own post as I made a boo-boo when writing down the main ingredient. It is N-Acetyl Cysteine. That is the correct main ingredient for NAC.
I put down "choline" and that is in error.